Lace up your …. And get ready to walk, run and have fun while supporting the CdLS Foundation.

Meet Zachary Isaiah Guran! He is 3 years old and was born with a rare syndrome called Cornelia de Lange Syndrome. Zach is an incredibly resilient kid. He consistently deals with some sort of discomfort daily. He struggles with hearing, and he is non-verbal which makes communication and caring for Zach very complicated. Some of his biggest challenges include feeding, swallowing, digestive discomfort, gaining weight (failure to thrive), low muscle tone, severe acid reflux, small hands, limbs, and feet, a weakened immune system, and several developmental delays. My wife and I have learned how to manage Zach’s needs, but we still don’t always get it right and are constantly learning new ways to help him as time goes on. It has been a difficult journey to say the least filled with unpredictable twists, medical mysteries, and scary moments. With that said, being his parents has been equally as rewarding.

To read more about Zach’s journey and Registration Information

Location:
Menomonee Park
W220 N7884, Town Line Rd
Menomonee Falls, WI US 53051