Running for those who cannot! Thirty athletes from all over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th […]

Join families from Missouri and surrounding states for a CdLS Foundation Family Gathering. Sunday, October 12, 2025 2-5 p.m. Graciously hosted by: Haylee and Josh, parents to Charlee Hercules Residence […]

Thank you to our sponsors, golfers, and donors who participated in this year MCWP & PLM’s 37th Annual Amber Gaines Memorial Golf Classic on October 13th. Your participation and generosity […]

Global Genes invites you to join us for the 8th and final session of our year-long virtual patient summit. Knowing The Rights for your RARE Child, (Or Yourself) 📅 Thursday, […]

It was an unforgettable weekend at the Baltimore Running Festival! Team CdLS Baltimore didn’t just cross finish lines; they surpassed their fundraising goal, raising over $16,700 for families affected by […]

Time: Registration begins at 9:30; walk begins at 10. - No advance registration required. - 2-mile walk on Stony's paved path at your own pace. We'll have coffee, donuts, bagels […]

Join families from Texas and surrounding states for a CdLS Foundation Family Gathering. Sunday, October 19, 2025 11:00 a.m. - 2:00 p.m. CT Graciously hosted by: Tiffany, mom to Tristan […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Join us for the Cornelia de Lange Syndrome Foundation's 11th Scientific Symposium Toward Therapy for Chromatin Disorders: CdLS and Beyond Friday, November 7, 2025 8:30 a.m. - 5:00 p.m. PT […]

Join families from California for a CdLS Foundation-sponsored Family Gathering. Saturday, November 8, 2025 11:00 a.m. - 3:00 p.m. P.T. Graciously hosted by: Traci, mother to Jacob Weber Sweet Shade […]