2023 Baltimore Running Festival

Join Team CdLS - Baltimore for a chance to run through the scenic Inner Harbor waterfront area, historic Federal Hill and charming Fells Point; all to raise money for children […]

Texas Family Gathering

Windhaven Meadows Park - Pavilion 10 a.m. - 2 p.m. CDT 5400 Windhaven ParkwayPlano, TX 75093 Hosted by Tiffany Hendricks, mom to Tristen and Olivia; Bailey Woods, mom to Carson.

2023 Walk for Will and Hope

Join us for the 2023 Walk for Will & Hope on Sunday, October 15, at Stony Creek Metropark in Shelby Township. We’ll walk two miles to raise funds for the […]

Iowa Family Gathering

Cutty’s Okoboji Resort Club 12pm – 5pm. 1528 Highway 86 Spirit Lake, IA 51360 Hosted by Kate Shaw, sister to Kimberly.

Multidisciplinary Clinic for Adolescents and Adults

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Giving Tuesday

Mark your calendars to create your social media outreach.

2023 Parent University™ Class 12: Wrap Up: Did you Get Real?

Sponsored by: Protected Tomorrows’ 2023 Parent University™ Speaker: Mary Anne Ehlert, President & Founder, Protected Tomorrows, Inc. Description: Protected Tomorrows’ 2023 Parent University™ brings you our twelfth and final in […]

A Day of Remembrance

Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives, and friends feel a tremendous loss and often have difficulty understanding why. It is so […]