Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists […]

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de […]

For 39 years, the CdLS Foundation has been focused on improving the health and well-being of individuals living with CdLS and their families. Now, as the CdLS community confronts the […]

Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]

Putting together legal documents is confusing. Legal “talk” sometimes intimidates us. But the real concepts are simple, and knowing what the legal “talk” means, how it applies to you and […]

This event has been POSTPONED. More details to come.

This event has been CANCELED. We are excited to announce important information regarding the 2022 CdLS Foundation National Family Conference! The Conference will be held in Tulsa, OK from June […]

Join worldwide CLS experts for a two-day virtual conference. Speakers will discuss topics ranging from behavior, gastrointestinal (GI) challenges, gene changes and a medical panel featuring the United States Medical […]

There are a myriad of insurance plans to understand. Health insurance, life insurance, disability insurance, long term care insurance – what to use, when? What makes sense? The ABLE account […]

Once your child is 22, they will start receiving social security. Now what? Where will your child live? Where will they work? Navigating the transition period can be overwhelming but […]