Time together making memories as a family may feel especially precious when the child is living with a life-threatening medical condition. Making memories and sharing experiences that become part of the child’s legacy and the family’s treasure box can take many forms and can happen anytime: special occasions or a typical weekday. There is meaning […]
The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, October 2, 2025 🕖 7:00 – 8:15 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]
Caring for a loved one who needs ongoing support is never simple—and when serious medical challenges arise, the journey can feel overwhelming. In this heartfelt and practical webinar, Bettie Bell shares the story of her autistic son Maurice’s stage 4 cancer diagnosis and the powerful lessons they discovered along the way. Together, Bettie and Maurice […]
Many of us are going to count on the siblings or other family members to step into our shoes. What jobs are they taking on? Do they feel like we have prepared them? What do they want to know yet? Have they already experienced the responsibilities? Have we as parents even talked with them, and […]
Children have unique medical, emotional, and developmental needs during disasters, and preparing to meet those needs is essential for effective response and recovery. This is even truer for children with a serious medical condition. This event will provide a platform for learning and sharing best practices to create an actionable plan that prioritizes the safety […]
Running for those who cannot! Thirty athletes from all over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th at The Bank of America Chicago Marathon. They will go through countless hours of physical and mental training all while raising awareness and funds for […]
Join families from Missouri and surrounding states for a CdLS Foundation Family Gathering. Sunday, October 12, 2025 2-5 p.m. Graciously hosted by: Haylee and Josh, parents to Charlee Hercules Residence 2283 Marilyn Drive Wentzville, MO 63385 Family Gatherings are planned with your whole family in mind. There will be activities for everyone. You'll have the […]
Thank you to our sponsors, golfers, and donors who participated in this year MCWP & PLM’s 37th Annual Amber Gaines Memorial Golf Classic on October 13th. Your participation and generosity made this year’s event a tremendous success this year. Because of you we raised over $80,000.00 to support the CdLS Foundation. Your generosity empowers us […]
Global Genes invites you to join us for the 8th and final session of our year-long virtual patient summit. Knowing The Rights for your RARE Child, (Or Yourself) 📅 Thursday, October 16th | 🕑 12:30 – 2:00 p.m. ET Understanding your legal rights is critical to effectively advocate for your child and yourself. Join us for […]
