Join Sara, the sister of Samira, for the Let's Talk About CdLS 5th Annual Parade. Saturday, May 11, 2024 11:00 a.m. – 3:00 p.m. Central Falls High School 24 Summer Street Central Falls, RI  

Join families in Fairmont, MN, for an International Awareness Day Event! Hosted by the Fausch family! Lunch will be served.    

Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 31st Annual New England Golf Classic to be held on Monday, MAY 20, 2024! This popular event will be played in spring. So be sure to make this your first golf outing of the year, and be ready for a great […]

Our guests from the Special Dads Network talk about their experiences. How can DADs help identify EMPLOYMENT opportunities for their child? How might the Special Dads Network help? Register now

Mixed Doubles Pickleball Tournament  Celebrating people with Cornelia de Lange Syndrome and disabilities.  Tournament Details June 15 | 9 AM to 12 PM The Painted Pickle 976 Brady Ave NW, Atlanta, GA 30318 Teams will advance through double elimination with teams playing one 15-point game per round. Losing once moves you to a secondary bracket, […]

Hosted by Michelle Reed, mother of Beth Ann and Christy Courtney Whetstone, mother of Bailey Aldersgate United Methodist Church, 8320 South Street, Lincoln NE We will be in the Sunshine Room and our lunch will be catered in by HyVee.

Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how […]

Let’s talk with some social programs around the country and how to learn more about them. The value of friendships, and what does that mean for you and your child. Build your own network or find one to fit into. Register now

For a Community Event to support Team CdLS athletes Sam, Kerry, and Dannielle in the Bank of America Chicago Marathon this fall. For more information, please contact Lisa Schroeder or call 860-899-1227. Event Flyer

Grief is naturally a parent’s constant companion, from diagnosis – or lack thereof – onwards, including into bereavement. Psychologist Wendy Lichenthal, PhD is both a grief researcher and a clinician, with a particular expertise in the psychology of cancer for the patient and the family. She will frame aspects of the grief experience and discuss […]