Parent University: OUR TOOLBOX IS FULL!! WHAT TOOL DO I USE WHEN? IT’S SO CONFUSING!! HELP!!
We hear from so many families about how they are confused as to how to use many tools we now have for planning for our loved one. Some of the […]
10 events found.
Events
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Adolescent and Adult Multidisciplinary Clinic
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]
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Parent Unversity: WE ALL NEED A VACATION! IS IT POSSIBLE TO MAKE THAT HAPPEN? YES!
Let’s meet some service providers that assist in vacation planning when you have a family member with unique needs. We’ll hear from some families who had successful and amazing experiences. […]
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Family Gathering – Virginia
Hosted by Emily Munoz, mom to Damien and Paula Messer, mom to William Saturday May 4th, 2024 11:30am - 3:30pm Lambert’s Point Community Center 1251 W. 42nd St. Norfolk, VA […]
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Parent University: HOW TO INTRODUCE FUTURE GUARDIANS AND TRUSTEES INTO OUR FAMILY PROCESS – WHEN AND HOW?
Family/Sibling communications. What they should know. What do they think they know and don’t know? If utilizing Corporate Guardians and Trustees, when to start to bring them into your process? […]
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International CdLS Awareness Day
International CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from […]
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Let’s Talk About CdLS 5th Annual Parade
Central Falls High School 24 Summer Street, Central Falls, RI, United StatesJoin Sara, the sister of Samira, for the Let's Talk About CdLS 5th Annual Parade. Saturday, May 11, 2024 11:00 a.m. – 3:00 p.m. Central Falls High School 24 Summer […]
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CdLS Awareness Day Event in Fairmont, MN
Join families in Fairmont, MN, for an International Awareness Day Event! Hosted by the Fausch family! Lunch will be served.
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2024 CdLS New England Golf Classic
Ipswich Country Club 148 Country Club Way, Ipswich, MA, United StatesPlans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 31st Annual New England Golf Classic to be held on Monday, MAY 20, 2024! This popular […]
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Parent University: FATHER’S DAY MONTH AT ITS BEST – DADS, DADS, AND MORE DADS! THE IMPORTANT ROLE OF DAD IN THE PLANNING FOR THE FUTURE
Our guests from the Special Dads Network talk about their experiences. How can DADs help identify EMPLOYMENT opportunities for their child? How might the Special Dads Network help? Register now