Having a sibling with special needs is a reality many children are born into. The advantages to having a sibling with special needs are numerous and include being more empathetic, more responsible and more resilient. However, these siblings also shoulder tremendous burdens that are not often or easily discussed. We will talk about the role siblings […]
Finding the transition program that best meets the needs of your child with a disability is so important. We will discuss the different types of programs, what type of program is best for your child, what types of community-based programs are out there, what programs will benefit your child, and how can you fund the […]
We will continue discussing the importance of The Dream Team and choosing the right people for the right job to ensure your child’s future success! We will talk more in-depth about how to build this team and keep moving them forward - making it easier for your future caregiver and educating your trustee. We will […]
The CdLS Foundation New England Golf Classic is set for Monday, September 27, 2021, in Ipswich, MA. Registration and breakfast begin at 7:45am with a 9am shotgun start, followed by cocktails, lunch, awards and prizes at 1:30pm. We missed this event last Spring due to the pandemic, and decided this year to move the event […]
Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 10, 2021 The CdLS Foundation will be there with you every step of the way, providing you […]
The Amber Gaines Memorial Golf Classic is scheduled for Monday, October 11th in St. Louis, MO. Registration and lunch begin at 11am with a 12:30pm shotgun start, followed by cocktails, dinner and prizes at 5:30pm. This is the 33rd annual Foundation golf tournament in MO. It was renamed the Amber Gaines Memorial Golf Classic last […]
Today, many people with special needs live in some type of community setting. With many housing options to choose from, how do you choose the right one for your child. We will discuss many of the options available: CILA, group home, living at home with parents or other family members, single family home with other […]
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations […]
A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New […]
