Time together making memories as a family may feel especially precious when the child is living with a life-threatening medical condition. Making memories and sharing experiences that become part of […]
The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, October 2, 2025 🕖 7:00 […]
Caring for a loved one who needs ongoing support is never simple—and when serious medical challenges arise, the journey can feel overwhelming. In this heartfelt and practical webinar, Bettie Bell […]
Many of us are going to count on the siblings or other family members to step into our shoes. What jobs are they taking on? Do they feel like we […]
Children have unique medical, emotional, and developmental needs during disasters, and preparing to meet those needs is essential for effective response and recovery. This is even truer for children with […]
Running for those who cannot! Thirty athletes from all over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th […]
Join families from Missouri and surrounding states for a CdLS Foundation Family Gathering. Sunday, October 12, 2025 2-5 p.m. Graciously hosted by: Haylee and Josh, parents to Charlee Hercules Residence […]
Thank you to our sponsors, golfers, and donors who participated in this year MCWP & PLM’s 37th Annual Amber Gaines Memorial Golf Classic on October 13th. Your participation and generosity […]
Global Genes invites you to join us for the 8th and final session of our year-long virtual patient summit. Knowing The Rights for your RARE Child, (Or Yourself) 📅 Thursday, […]
