This event will help families understand the numerous stages to be considered while developing a special needs master plan for their loved one experiencing a disability. Presented by Mary McDirmid […]

You scream! I scream! We all scream for ice cream! Meet with friends, enter to win an ice cream party, and learn more about CdLS while supporting Team CdLS in […]

“Rolling for Paige” is a special fundraiser dedicated to raising awareness about Cornelia de Lange Syndrome (CdLS), a rare genetic disorder. Paige, the inspiration behind this event, was diagnosed with […]

Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering.  Saturday, July 12, 2025 2 – 6 p.m. ET       The Arp Home 9B […]

Running for those who cannot! Thirty athletes for over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th at […]

Tapawingo National Golf ClubSunset Hills, MOMore details to follow

We are delighted to invite you to become a part of Team CdLS Baltimore for the 25th Annual Baltimore Running Festival, taking place on Saturday, October 18, 2025! This exciting […]