Meet Zuri, Our Joyful Bloom! Zuri is a bright light in our lives, full of strength, love, and a spirit that keeps blooming no matter the season. She lives […]

International CdLS Awareness Day is observed each year to increase understanding and bring attention to Cornelia de Lange Syndrome (CdLS), an often misdiagnosed and little-known genetic condition. This special day […]

Join Us for the 6th Annual CdLS Awareness Parade & Celebration! 📍 Central Falls📅 May 10, 2025🕘 11:00 a.m. We’re proud to host our 6th annual event in honor of Samira, […]

This event will help families understand the numerous stages to be considered while developing a special needs master plan for their loved one experiencing a disability. Presented by Mary McDirmid […]

You scream! I scream! We all scream for ice cream! Meet with friends, enter to win an ice cream party, and learn more about CdLS while supporting Team CdLS in […]

You’re invited to a roll-a-thon in honor of Paige! Bring your favorite wheels – bikes, skates, hoverboards, anything with wheels and get ready to roll! Minimum donation of $5 per […]

Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering.  Saturday, July 12, 2025 2 – 6 p.m. ET       The Arp Home 9B […]

Running for those who cannot! Thirty athletes for over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th at […]

Tapawingo National Golf ClubSunset Hills, MOMore details to follow

We are delighted to invite you to become a part of Team CdLS Baltimore for the 25th Annual Baltimore Running Festival, taking place on Saturday, October 18, 2025! This exciting […]