Northeast Region Family Gathering
De Hart Community Center 120 Burnett Ave, Maplewood, NJ, United StatesHosted by Karen Aschenbrenner and Robert Boneberg, parents of Alex
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New England Charity Golf Tournament
Ipswich Country Club 148 Country Club Way, Ipswich, MA, United StatesJoin us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich, […]
Neurodevelopmental Disorders and Behavioral Management in CdLS Webinar
This webinar will provide an overview of neurodevelopmental challenges, including approaches to treatment, in Cornelia de Lange syndrome (CdLS). Individuals with CdLS can be affected by a number of developmental […]
Northwest Illinois Family Gathering
Burning Bush Community Center 1313 N. Burning Bush, Mount Prospect, IL, United States
Virginia Family Gathering
Lambert’s Point Rec Center 4100 Bowdens Ferry Rd., Norfolk, VA, United StatesFamilies are asked to bring a dish to share potluck style. Everyone is welcome! Please RSVP by 7.19.19 with the number of adults/children that will be attending You may email […]
Gastrointestinal (GI) Challenges: Critical Care and Treatment Approaches
This webinar will: Identify malrotation Discuss signs of volvulus Discuss bowel obstruction Discuss pancreatitis Review treatment/care approaches to the above Presenter: Carol Potter, MD, Nationwide Children's Hospital
Missouri Family Gathering
Wonderland Camp 18591 Miller Circle, Rocky Mount, MO, United StatesHosted by the Rauba Family For more information contact Lynn Audette at families@CdLSusa.org
CdLS Conference Fundraising Tips Webinar
With the National Family Conference approaching in just under 10 months, now is the time to plan and save. Tasha Howland, Life Coach and mom to Peyton, will offer tips […]
Northwest Family Gathering
Valley Ridge Community Center 4644 S 188th St, SeaTac, WA, United States
Brew & BBQ
Currahee Brewing Company 25 South Main Street, Alpharetta, GA, United StatesJoin us for the 10th Annual Brew & BBQ for CdLS. Tickets: $35 in advance/$40 at the door Includes BBQ, 2 beer tickets & LIVE music. Cash bar available. Bid […]