Name: Missouri Family Gathering
Start: 2019-08-17T00:00:00+00:00
End: 2019-08-17T23:59:59+00:00
Location: Wonderland Camp

May 2019
May 4, 2019 @ 1:00 pm - 4:00 pm

Midwest Region Family Gathering

Bloomfield Hills Schools 7273 Wing Lake Road, Bloomfield Hills, MI, United States
May 5, 2019

2019 TD Five Boro Bike Tour

New York City

Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]
May 9, 2019 @ 1:00 pm - 2:00 pm

How to Address Challenging Behaviors Webinar

This webinar will discuss: • Self-injury • Impulse control • Destruction of property • Determining the appropriate consequences • Treatment options (ABA, etc.) or professional resources for families Presenter: Julia […]
May 18, 2019 @ 11:30 am - 2:30 pm

Northeast Region Family Gathering

De Hart Community Center 120 Burnett Ave, Maplewood, NJ, United States

Hosted by Karen Aschenbrenner and Robert Boneberg, parents of Alex
May 20, 2019

New England Charity Golf Tournament

Ipswich Country Club 148 Country Club Way, Ipswich, MA, United States

Join us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich, […]
June 2019
June 13, 2019 @ 12:00 pm - 1:00 pm

Neurodevelopmental Disorders and Behavioral Management in CdLS Webinar

This webinar will provide an overview of neurodevelopmental challenges, including approaches to treatment, in Cornelia de Lange syndrome (CdLS). Individuals with CdLS can be affected by a number of developmental […]
June 22, 2019 @ 4:00 pm - 7:00 pm

Northwest Illinois Family Gathering

Burning Bush Community Center 1313 N. Burning Bush, Mount Prospect, IL, United States
July 2019
July 27, 2019 @ 12:00 pm - 3:00 pm

Virginia Family Gathering

Lambert’s Point Rec Center 4100 Bowdens Ferry Rd., Norfolk, VA, United States

Families are asked to bring a dish to share potluck style. Everyone is welcome! Please RSVP by 7.19.19 with the number of adults/children that will be attending You may email […]
July 31, 2019 @ 1:00 pm - 2:00 pm

Gastrointestinal (GI) Challenges: Critical Care and Treatment Approaches

This webinar will: Identify malrotation Discuss signs of volvulus Discuss bowel obstruction Discuss pancreatitis Review treatment/care approaches to the above Presenter: Carol Potter, MD, Nationwide Children's Hospital
August 2019
August 17, 2019

Missouri Family Gathering

Wonderland Camp 18591 Miller Circle, Rocky Mount, MO, United States

Hosted by the Rauba Family For more information contact Lynn Audette at [email protected]