Many of us are going to count on the siblings or other family members to step into our shoes. What jobs are they taking on? Do they feel like we […]

Running for those who cannot! Thirty athletes from all over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th […]

Hosted by Haylee and Josh, parents of CharleeSunday October 12, 20252-5pmHercules ResidenceWentzville, MO 63385 You’re invited to the Amber Gaines Memorial Golf Classic the next day! Not a golfer, not […]

This long-standing Missouri golf outing is one of the CdLS Foundation’s largest fundraisers. Last year’s MCWP & PLM’s 36th Annual Amber Gaines Memorial Golf Classic did not disappoint. 132 golfers […]

We are delighted to invite you to become a part of Team CdLS Baltimore for the 25th Annual Baltimore Running Festival, taking place on Saturday, October 18, 2025! This exciting […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Join families from Irvine and other parts of California for a CdLS Foundation-sponsored Family Gathering. More information to follow!

Hosted by Traci Nishiyama, mother to JacobSaturday, November 8, 202511am-3pmSweet Shade Ability Center15 Sweet ShadeIrvine, CA

We all have differing experiences as we think about the future. The best way to learn is from others. Le’t hear some great ideas and pitfalls to avoid. Share the […]

Use GivingTuesday to Support the CdLS Foundation! Mark your calendars for December 2. It is the annual celebration of GivingTuesday, a global movement that inspires people to give, collaborate, and […]