Events

Many runners say that running has changed their lives.  Team CdLS runners say that they changed the lives of others.  Join the Cornelia de Lange Syndrome (CdLS) Foundation at the […]

The Amber Gaines Memorial Golf Classic is scheduled for Monday, October 14th in St. Louis, MO. Registration and lunch begin at 11am with a 12:30pm shotgun start, followed by cocktails, […]

Team CdLS members will surely have a unique and memorable experience as we tour every city corner and raise $15,000 for the CdLS Foundation. Join us as we run or […]

Neurological diseases are often complex, and life, including decision-making, can be hard to navigate in the face of uncertainty about how the future may unfold. Join us for a discussion […]

Saddle up and join us …… At Carters Arena in Chiefland, FL, we will have some Halloween-themed rodeo fun while raising awareness and funds for the CdLS Foundation. Come dressed […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Mark your calendars for this upcoming virtual social group meetup on November 12th! During this meetup we connect with siblings of individuals with disabilities. This is a great opportunity to […]

Join us as we sit down with Bobbie Thompson, Executive Director of the Fox Valley Advance Care Planning Partnership. In this interview-style event, we will help you learn more about […]

Let’s listen to some more professionals that will give us coping mechanisms to help. Send your questions to us in advance to get some good advice shared with the group. […]

Saddle up and join us! Only two Bulls and Barrles Rodeos left and you dont want to miss the fun and excitement. Hollywood Harris will be there to entertain the […]