On Saturday, November 10th from 5:00 – 8:30 pm, at Currahee Brewing Co. in Alpharetta, GA the 9th Annual Brew & BBQ to benefit the CdLS Foundation will be held. Last year, the event raised a net of $9,000, the highest total to date. Over the last eight years the event has raised over $39,000 […]

Save the date for the Southeast Region Family Gathering!  Hosted by Angie Young and being held in Fort Myers, FL.  Join families in the southeast region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better […]

Hosted by Courtney Hegarty, AZ Regional Coordinator

(Serving individuals with CdLS who are 18 years old and younger) For more information contact Lynn Audette at LAudette@CdLSusa.org

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de Lange Syndrome (CdLS) Foundation at the United Airlines NYC Half Marathon Sunday, March 17, 2019 The CdLS Foundation will be there with you every step […]

Hosted by Fran Rissland, mom to Riley For more information contact Fran at fran_rissland@hotmail.com

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