Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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April 2023

Multidisciplinary Clinic for Adolescents and Adults

April 1

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…

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CdLS Foundation Webinar Series: Navigating the Health Care System

April 11 @ 1:00 pm - 2:30 pm

So much of our ability to access medical and behavioral health care in the U.S. depends on a family's health insurance. Whether your health coverage is offered by your employer, purchased on a health exchange, or includes Medicaid or Medicare, understanding health insurance is a challenge for just about everyone. Making sure you make the best selection possible for your family, understand your benefits, and how to get the most from your health plan is even more important when someone…

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Understanding and Addressing Pediatric Medical Trauma

April 12 @ 8:00 pm - 9:00 pm

Anyone, from infancy through adulthood, can experience medical trauma. Caregivers can too. Understanding what medical trauma is and knowing the signs can help you get support for your child and family. Dr. Meghan Marsac, pediatric psychologist, and pediatric medical trauma expert, and Melissa Hogan, mother of a child with a rare disease, wrote the book “Afraid of the Doctor” to help families who experience stressful and potentially traumatic medical events. Join us in conversation with them to learn more about…

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May 2023

CdLS Awareness Day

May 13

CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. For more information contact Gabrielle Nadeau

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CdLS Foundation Webinar Series: Speech, Language, and AAC Devices

May 19 @ 3:00 pm - 4:00 pm
Zoom Webinar
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2023 New England Golf Classic

May 22
Ipswich Country Club, 148 Country Club Way
Ipswich, MA 01938 United States

Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 30th Annual New England Golf Classic to be held on Monday, MAY 22, 2023! This popular event will be played in spring. So be sure to make this your first golf outing of the year, and be ready for a great day of golf and camaraderie! Learn more

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June 2023

Illinois Family Gathering

June 25 @ 2:00 pm - 5:00 pm

Join families from Illinois for a CdLS Foundation Sponsored Family Gathering. Graciously hosted by Charyn Beaumont, June 25, 2023 2-5pm PM CST at the Burning Bush Community Center in Mount Prospect, IL. For more information, contact: Register here

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August 2023

Kansas Family Gathering

August 5 @ 10:30 am - 12:30 pm

Join us for a CdLS Family GatheringSaturday August 5, 202310:30 - 12:30Christ Community Church20600 W 119th StreetOlathe, KS 66061Hosted by Ashley and Matt Franck, parents to Sage. RSVP mattandashley28@gmail.comA light lunch will be provided

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September 2023

2023 Parent University™ Class 9: Don’t Stress Out: Finding Professionals to Help

September 21 @ 12:00 pm - 1:00 pm

Protected Tomorrows’ 2023 Parent University™ brings you our ninth in a series of educational webinars… “Don’t Stress Out: Finding Professionals to Help” Our guest speakers will talk about the stress we often face as caregivers (or as the person with the disability); maybe we can’t avoid it, but we certainly should be able to find professionals who can guide us to survive it. What everyday techniques can we learn, and if we need professional assistance from a medical professional, can…

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Aubrie’s Army Fundraiser for the CdLS Foundation

September 23 @ 2:00 pm - 5:00 pm

Please join Aubrie's Army for an afternoon fundraiser to raise awareness and funds for CdLS. Activities include a silent auction, a 1-mile fun run or walk option, light refreshments, and raffle prices. Bid winners will be announced at 4:30 PM. Fun Run tickets are $25 per person. The fun run event starts at 3 PM, and participants receive a shirt and gift bag. ALL PROCEEDS WILL GO DIRECTLY TO THE CdLS FOUNDATION. Hannah Park 6547 Clark State Road Gahanna, OH…

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