September 2020
Parent University: Your Child Is Aging Out … What Now?
Once your child is 22, they will start receiving social security. Now what? Where will your child live? Where will they work? Navigating the transition period can be overwhelming but also exciting. It’s not just about the place, it’s about the right home, continuing education, job opportunities, recreation, and the rest that makes life safe and fulfilling.
Find out more »October 2020
Special Olympics Illinois hosts – Including IL ABLE in Your Special Needs Financial Plan – Part 1
Description: Learn how to put IL ABLE to work for you and/or for your Special Olympics athlete during this 3-part Webinar series. IL ABLE will join Protected Tomorrows as guest presenters from Noon – 1:00 pm Central Time on October 7, October 14 and October 21. Part 1: • IL ABLE Account Basics o Benefits of an ABLE Account o Eligibility o Contributing to and spending from an IL ABLE account o Overview of ABLE programs across the country o…
Find out more »2020 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 11, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner •…
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Special Olympics Illinois hosts – Including IL ABLE in Your Special Needs Financial Plan – Part 2
Learn how to put IL ABLE to work for you and/or for your Special Olympics athlete during this 3-part Webinar series. IL ABLE will join Protected Tomorrows as guest presenters from Noon – 1:00 pm Central Time on October 7, October 14 and October 21. Part 2: • IL ABLE Accounts, Public Benefits and Special Needs Financial Planning o ABLE and public benefits o Practical uses of the IL ABLE account o How an ABLE account might be funded o…
Find out more »Parent University: Retirement Planning – A Family Affair
Saving for the long term, understanding all of the opportunities and pitfalls, and knowing how family coordinated plans are key to our success is not often discussed. Understand the questions to ask, the numbers to crunch, and the ways we need to work together in our planning to be successful.
Find out more »Special Olympics Illinois hosts – Including IL ABLE in Your Special Needs Financial Plan – Part 3
Learn how to put IL ABLE to work for you and/or for your Special Olympics athlete during this 3-part Webinar series. IL ABLE will join Protected Tomorrows as guest presenters from Noon – 1:00 pm Central Time on October 7, October 14 and October 21. Part 3: • Including IL ABLE in Your Overall Financial Plan with Special Global Messenger Guest o How the IL ABLE account coordinates with the other financial tools available to families o Recordkeeping (Mary Anne)…
Find out more »CdLS Foundation UK & Ireland: CdLS Autumn Virtual Conference
The CdLS Foundation of UK & Ireland is unable to hold physical, in-person conference this year, they are offering a virtual conference experience instead. They will have keynote presentations followed by live Q&A sessions after each, where you get to ask specific questions of our experts. With some familiar speakers and a new face or two, they aim to provide the same quality information but tailored to what you, our families, wanted us to focus on. Click here to see…
Find out more »November 2020
Virtual Multidisciplinary Clinic For Adolescents And Adults
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. This year the clinic will be virtual. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology,…
Find out more »Parent University: Progress Report / Goal Setting Time
A look at how the small steps you started out with this year are adding up to real progress in planning for your family’s future and to set your goals for the next year.
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