October 2019
2019 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner…
Find out more »2019 Baltimore Running Festival
Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
Find out more »Retiring for 3 Webinar
Mary Anne Ehlert will be presenting an in depth look at what Retiring for 3 means: How much do you need and how much does your child need? When should you take Social Security? Does Medicare matter enough to take your Social Security sooner? What will your child get in Social Security and when? What else changes for your child when You retire? Does your pension impact your child’s benefits?
Find out more »November 2019
Multidisciplinary Clinic for Adolescents and Adults
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Find out more »TCS New York City Marathon
TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet…
Find out more »January 2020
CdLS Clinic at St. Louis Children’s Hospital
St. Louis Children's Hospital in St. Louis, Missouri will host their second Cornelia de Lange Syndrome clinic. The specialties in attendance will include the following: genetics, neurology, ophthalmology, audiology/ear, nose and throat, and psychology. For further details, contact Whitney Rinaldi, BSW, at familyservice@CdLSusa.org
Find out more »March 2020
CdLS Clinic at Shriner’s Hospital
Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists available just for children with CdLS (new patients must be age 18 and younger). The specialties will include the following: pediatric orthopeadics, eyes ears nose and throat, gastrointestinal, pediatrics, neurology, genetics, the orthotics and prosthetic lab, and physical and occupational therapy services. Shriners Hospital for Children-Salt Lake City has been…
Find out more »2020 United Airlines NYC Half
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de Lange Syndrome (CdLS) Foundation at the United Airlines NYC Half Marathon Sunday, March 15, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • An official Team CdLS singlet • Team CdLS Swag Bag • Pre-Race Luncheon • Weekly…
Find out more »April 2020
COVID-19 and Individuals with CdLS Webinar
For 39 years, the CdLS Foundation has been focused on improving the health and well-being of individuals living with CdLS and their families. Now, as the CdLS community confronts the COVID-19 pandemic, you are invited to join the Foundation and Drs. Antonie Kline and Soma Jyonouchi for a 30-minute webinar to hear how it affects individuals with CdLS and learn of resources that can help during this public health crisis. Register Here - - - Dr. Kline joined the CdLS…
Find out more »May 2020
2020 TD Five Boro Bike Tour
Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 3, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed entry and placement in the first Start Wave • An official Team CdLS singlet • Pre-Race Luncheon • VIP Access to the Finish…
Find out more »