Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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May 2024

Parent University: HOW TO INTRODUCE FUTURE GUARDIANS AND TRUSTEES INTO OUR FAMILY PROCESS – WHEN AND HOW?

May 9 @ 1:00 pm - 2:00 pm

Family/Sibling communications. What they should know. What do they think they know and don’t know? If utilizing Corporate Guardians and Trustees, when to start to bring them into your process? How to find peace of mind about the future. Register now

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International CdLS Awareness Day

May 11

International CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. For more information contact Gabrielle Nadeau

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Let’s Talk About CdLS 5th Annual Parade

May 11 @ 11:00 am - 3:00 pm
Central Falls High School, 24 Summer Street
Central Falls, RI United States
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Join Sara, the sister of Samira, for the Let's Talk About CdLS 5th Annual Parade. Saturday, May 11, 2024 11:00 a.m. – 3:00 p.m. Central Falls High School 24 Summer Street Central Falls, RI  

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CdLS Awareness Day Event in Fairmont, MN

May 11 @ 1:00 pm - 3:00 pm

Join families in Fairmont, MN, for an International Awareness Day Event! Hosted by the Fausch family! Lunch will be served.    

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2024 CdLS New England Golf Classic

May 20
Ipswich Country Club, 148 Country Club Way
Ipswich, MA 01938 United States

Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 31st Annual New England Golf Classic to be held on Monday, MAY 20, 2024! This popular event will be played in spring. So be sure to make this your first golf outing of the year, and be ready for a great day of golf and camaraderie!

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June 2024

Parent University: FATHER’S DAY MONTH AT ITS BEST – DADS, DADS, AND MORE DADS! THE IMPORTANT ROLE OF DAD IN THE PLANNING FOR THE FUTURE

June 13 @ 1:00 pm - 2:00 pm

Our guests from the Special Dads Network talk about their experiences. How can DADs help identify EMPLOYMENT opportunities for their child? How might the Special Dads Network help? Register now

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The Purple Pickle

June 15 @ 9:00 am - 12:00 pm
The Purple Pickle, 976 Brady Ave NW
Atlanta, GA 30318 United States
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Mixed Doubles Pickleball Tournament  Celebrating people with Cornelia de Lange Syndrome and disabilities.  Tournament Details June 15 | 9 AM to 12 PM The Painted Pickle 976 Brady Ave NW, Atlanta, GA 30318 Teams will advance through double elimination with teams playing one 15-point game per round. Losing once moves you to a secondary bracket, maintaining a chance for redemption. Each team will be guaranteed to play twice. Only mixed doubles teams are invited to compete. All skill levels are…

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July 2024

Nebraska Family Gathering

July 6 @ 11:00 am - 2:00 pm

Hosted by Michelle Reed, mother of Beth Ann and Christy Courtney Whetstone, mother of Bailey Aldersgate United Methodist Church, 8320 South Street, Lincoln NE We will be in the Sunshine Room and our lunch will be catered in by HyVee.

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Bulls and Barrels Series

July 13 @ 7:00 pm - 8:00 pm

Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all…

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Parent University: LIFE SHOULD NOT BE ALL WORK AND NO PLAY – THE IMPORTANCE OF FRIENDS

July 18 @ 1:00 pm - 2:00 pm

Let’s talk with some social programs around the country and how to learn more about them. The value of friendships, and what does that mean for you and your child. Build your own network or find one to fit into. Register now

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