April 2022
Protected Tomorrows, Parent University: – Benefits: What You Need to Know & Get Clarity about the Often-Asked Questions
We will discuss SSI, SSDI, DAC, Medicare, and Medicaid. We will talk about confusing topics like A.) Charging your child rent versus using the fair share formula. B.) Why do I hear you always get turned down the first time you apply for SSI? Is it true? C.) Do we really need to plan differently as to how we as parents plan to take our own Social Security?
Find out more »May 2022
National CdLS Awareness Day
CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. For more information contact Gabrielle Nadeau
Find out more »Protected Tomorrows, Parent University – Siblings & Caregivers: What They Might Want to Ask & What We Need to Tell Them
In this class, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as parents want confidence that our plan will work as Future Caregivers who will take on this very important role. The hard questions will be addressed. We will get the advice from those who have stepped into the role to give us their input as well.
Find out more »2022 New England Golf Classic
Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 29th Annual New England Golf Classic to be held on Monday, MAY 23, 2022! That's right this popular event has been moved back to it's original season and will be played in Spring. So be sure to make this your first golf outing of the year, and be ready for a great day of golf and camraderie! Learn more
Find out more »June 2022
2nd Annual Hit the Trails in Avon, CT
Find out how to start your peer-to-peer fundraising and join CdLS Foundation families, staff and volunteers as we walk, run or bike an easy stint along one of the scenic Rail Trails in New England on the Farmington Valley Greenway Trail. Events@cdlsusa.org
Find out more »Protected Tomorrows, Parent University – How to Make Life Better: Vacations Tips & Service Dogs
In this class, we will talk about taking vacations with your special needs child. How to plan better. Ideas so the whole family can have fun! How do we plan to make sure this continues by adding the recreation into our planning? And what about Service Dogs; Can they bring happiness and comfort to your child’s life?
Find out more »July 2022
Protected Tomorrows, Parent University – Your Dream Team… Who Needs To Be There When You Can Not
We will discuss what your Child’s Dream Team should consist of, such as your legal team, your financial team, medical support, recreation coordinators and the Coaches (the caregivers and guardians), How do you put a PLAYBOOK together with all the instructions your Team needs? What questions should you be asking your Dream Team now? How do you know if they are the right people for the Team? Tips and Ideas will be discussed. How will you keep them informed going…
Find out more »August 2022
Protected Tomorrows, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?
Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job counseling, job coaching, and turning your child’s interest into a business opportunity.
Find out more »Protected Tomorrows, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?
Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job counseling, job coaching, and turning your child’s interest into a business opportunity.
Find out more »September 2022
Protected Tomorrows, Parent University – What Are the Options, What Is the Best Fit, & How to Fund Them
In this class, we will explain in detail, current residential options: living with your parents, Section 8 housing, CILAS, group/supportive housing, skilled nursing facilities, and Special Needs Trust ownerships/paying rent. We will talk about determining the best fit for your child and how to fund the different options.
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