Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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April 2022

Protected Tomorrows, Parent University: – Benefits: What You Need to Know & Get Clarity about the Often-Asked Questions

April 21 @ 12:00 pm

We will discuss SSI, SSDI, DAC, Medicare, and Medicaid. We will talk about confusing topics like A.) Charging your child rent versus using the fair share formula. B.) Why do I hear you always get turned down the first time you apply for SSI? Is it true? C.) Do we really need to plan differently as to how we as parents plan to take our own Social Security?

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May 2022

National CdLS Awareness Day

May 14

CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. For more information contact Gabrielle Nadeau

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Protected Tomorrows, Parent University – Siblings & Caregivers: What They Might Want to Ask & What We Need to Tell Them

May 19 @ 12:00 pm

In this class, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as parents want confidence that our plan will work as Future Caregivers who will take on this very important role. The hard questions will be addressed. We will get the advice from those who have stepped into the role to give us their input as well.

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2022 New England Golf Classic

May 23
Ipswich Country Club, 148 Country Club Way
Ipswich, MA 01938 United States

Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 29th Annual New England Golf Classic to be held on Monday, MAY 23, 2022! That's right this popular event has been moved back to it's original season and will be played in Spring. So be sure to make this your first golf outing of the year, and be ready for a great day of golf and camraderie! Learn more

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June 2022

2nd Annual Hit the Trails in Avon, CT

June 11

Find out how to start your peer-to-peer fundraising and join CdLS Foundation families, staff and volunteers as we walk, run or bike an easy stint along one of the scenic Rail Trails in New England on the Farmington Valley Greenway Trail. Events@cdlsusa.org

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Protected Tomorrows, Parent University – How to Make Life Better: Vacations Tips & Service Dogs

June 16 @ 12:00 pm

In this class, we will talk about taking vacations with your special needs child. How to plan better. Ideas so the whole family can have fun! How do we plan to make sure this continues by adding the recreation into our planning? And what about Service Dogs; Can they bring happiness and comfort to your child’s life?

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July 2022

Protected Tomorrows, Parent University – Your Dream Team… Who Needs To Be There When You Can Not

July 21 @ 12:00 pm

We will discuss what your Child’s Dream Team should consist of, such as your legal team, your financial team, medical support, recreation coordinators and the Coaches (the caregivers and guardians), How do you put a PLAYBOOK together with all the instructions your Team needs? What questions should you be asking your Dream Team now? How do you know if they are the right people for the Team? Tips and Ideas will be discussed. How will you keep them informed going…

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August 2022

Protected Tomorrows, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?

August 11 @ 12:00 pm

Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job counseling, job coaching, and turning your child’s interest into a business opportunity.

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Protected Tomorrows, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?

August 11 @ 12:00 pm

Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job counseling, job coaching, and turning your child’s interest into a business opportunity.

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September 2022

Protected Tomorrows, Parent University – What Are the Options, What Is the Best Fit, & How to Fund Them

September 22 @ 12:00 pm

In this class, we will explain in detail, current residential options: living with your parents, Section 8 housing, CILAS, group/supportive housing, skilled nursing facilities, and Special Needs Trust ownerships/paying rent. We will talk about determining the best fit for your child and how to fund the different options.

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