The next CdLS Foundation Parent Support Group is scheduled for April 2, and we’d love to welcome you. 📅 April 2, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided […]

International Siblings Day is a special time to celebrate the unique, lifelong bond between brothers and sisters. Siblings of individuals with CdLS play an incredible role, offering love, support, advocacy, […]

This Foundation-managed, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore, Maryland. Led since 2001 by Foundation Medical Director […]

Join us at this year’s Denise D’Ascenzo Foundations annual Walk to Fight Rare Diseases. The event will take place at Quinnipiac University, Burt Khan Gym at 10AM. There is plenty […]

The next CdLS Foundation Parent Support Group is scheduled for May 7, and we’d love to welcome you. 📅 May 7, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided […]

International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This […]

Join families from Missouri and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Sprehe Family, parents of Izaak. Saturday, May 9, 2026 11 a.m. - 3 […]

Join families from Texas for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Hendricks and Woods/Jacob families. Saturday, May 30, 2026 10:30 a.m. - 1:30 p.m. C.T. Victory Forest […]

The next CdLS Foundation Parent Support Group is scheduled for June 4, and we’d love to welcome you. 📅 June 4, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided […]

Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Radionov Family, parents of Kaleb. June 13, 202611 a.m. - 4 p.m. […]