Join a panel of siblings to gain insights into the fears and worries that siblings carry, the things that helped them (and those that didn’t), and how loving a brother […]

We are very grateful to every one of you, our sponsors, golfers, and donors, whose participation and generosity made our recent golf tournament a heartfelt success. Thanks to your support, […]

  Meet Zuri, Our Joyful Bloom! Zuri is a bright light in our lives, full of strength, love, and a spirit that keeps blooming no matter the season. She lives […]

International CdLS Awareness Day is observed each year to increase understanding and bring attention to Cornelia de Lange Syndrome (CdLS), an often misdiagnosed and little-known genetic condition. This special day […]

Join Us for the 6th Annual CdLS Awareness Parade & Celebration! 📍 Central Falls📅 May 10, 2025🕘 11:00 a.m. We’re proud to host our 6th annual event in honor of Samira, […]

This event will help families understand the numerous stages to be considered while developing a special needs master plan for their loved one experiencing a disability. Presented by Mary McDirmid […]

Join the Arc of Illinois for an important webinar on Medicaid and its vital services. The webinar will be held on Friday, May 23, from 12 - 1 p.m. ET. […]

You're invited to a presentation featuring the latest updates from the Social Security Administration! Join us as we explore important new information and highlight the online services offered by Social […]

You scream! I scream! We all scream for ice cream! Meet with friends, enter to win an ice cream party, and learn more about CdLS while supporting Team CdLS in […]

The CdLS Foundation is excited to announce the launch of our Virtual Support Groups for Parents—a new way to connect, share, and support one another. First Session: 🗓 Thursday, June […]