The Walk for Will & Hope is returning to Stony Creek Metropark, 4300 Main Park Drive, Shelby Township, on Sunday, October 13. This event is a wonderful opportunity for community members to […]

Many runners say that running has changed their lives.  Team CdLS runners say that they changed the lives of others.  Join the Cornelia de Lange Syndrome (CdLS) Foundation at the […]

The Amber Gaines Memorial Golf Classic is scheduled for Monday, October 14th in St. Louis, MO. Registration and lunch begin at 11am with a 12:30pm shotgun start, followed by cocktails, […]

Team CdLS members will surely have a unique and memorable experience as we tour every city corner and raise $15,000 for the CdLS Foundation. Join us as we run or […]

Neurological diseases are often complex, and life, including decision-making, can be hard to navigate in the face of uncertainty about how the future may unfold. Join us for a discussion […]

Saddle up and join us …… At Carters Arena in Chiefland, FL, we will have some Halloween-themed rodeo fun while raising awareness and funds for the CdLS Foundation. Come dressed […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Mark your calendars for this upcoming virtual social group meetup on November 12th! During this meetup we connect with siblings of individuals with disabilities. This is a great opportunity to […]

Join us as we sit down with Bobbie Thompson, Executive Director of the Fox Valley Advance Care Planning Partnership. In this interview-style event, we will help you learn more about […]

Let’s listen to some more professionals that will give us coping mechanisms to help. Send your questions to us in advance to get some good advice shared with the group. […]