The next CdLS Foundation Parent Support Group is scheduled for August 8, and we’d love to welcome you. 📅August 8, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from […]
The CdLS Foundation, in partnership with Shriners Children’s Salt Lake City, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13, 2026, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive, coordinated medical care in one convenient location. […]
August Parent University™ Class Presented by Protected Tomorrows Class Eight Education: Back-to-School Tips August 13, 2026 12:00 – 1:00 p.m. CST “School” can mean many things. In this exciting session about back-to-school tips, Protected Tomorrows will cover: • If your child is young, what is an IEP? • If your child is older, what can […]
Hosts: Jennifer and Nicholas ArpPerson with CdLS: Jenna Arp August 29th 2 – 6 p.m. ET Location:The Arp Home9B Sandpiper LaneRexford, NY Bring your swimsuit and towel to enjoy the pool! Bring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share […]
The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
September Parent University™ Class Presented by Protected Tomorrows Class Nine The Many Faces of Protection September 10, 2026 12:00 – 1:00 p.m. CST In this exciting session, Protected Tomorrows will cover: • How do you best protect what you’ve built for now and for the future? • Do you have the right kind of protection? […]
Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Stagg family, Parents to AJ Saturday, September 19, 2026 Times to be determined Location to be determined. Sebastopol, CA Bring the whole family and join us! You'll have the chance to meet families in the area who share […]
The next CdLS Foundation Parent Support Group is scheduled for October 1, and we’d love to welcome you. 📅 October 1, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents who truly understand […]
October Parent University™ Class Presented by Protected Tomorrows Class Ten Employment: Bringing a Sense of Purpose October 8, 2026 12:00 – 1:00 p.m. CST In this exciting session about employment, Protected Tomorrows will cover: • What types of jobs are available for my child in the future? How do I help prepare my child for […]
Cheer on and support our amazing team of 33 athletes from all over the country and Mexico when Team CdLS participates in their 27th year at the Bank of America Chicago Marathon. This talented and diverse group of athletes will meet on October 11th and run 26.2 miles for those who cannot all while raising […]