International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This meaningful day is about more than awareness; it’s about connection, education, and hope. Families, advocates, healthcare professionals, and supporters unite to share stories, spread knowledge, […]
Join families from Missouri and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Sprehe Family, parents of Izaak. Saturday, May 9, 2026 11 a.m. - 3 p.m. CT Millennium Park 2 Barnes W Drive Creve Coeur, MO 63141 Celebrate International CdLS Awareness Day with us! Bring the whole family and join […]
Join families from Texas for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Hendricks and Woods/Jacob families. Saturday, May 30, 2026 10:30 a.m. - 1:30 p.m. C.T. Victory Forest Community Center 3427 Hemphill Street Fort Worth, TX 76110 Family Gatherings are planned with your whole family in mind. CdLS Foundation staff and Clinical Advisory […]
The next CdLS Foundation Parent Support Group is scheduled for June 4, and we’d love to welcome you. 📅 June 4, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Behavior This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents […]
Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Radionov Family, parents of Kaleb. June 13, 202611 a.m. - 4 p.m. ET Mt. Olivet UMC1082 Community RoadLexington, NC 27295 *A Hoyer lift and adult changing table available at the venue.* Bring the whole family and join […]
The next CdLS Foundation Parent Support Group is scheduled for July 2, and we’d love to welcome you. 📅 July 2, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Healthy Living This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
The next CdLS Foundation Parent Support Group is scheduled for August 8, and we’d love to welcome you. 📅August 8, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from […]
The CdLS Foundation, in partnership with Shriners Children’s Salt Lake City, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13, 2026, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive, coordinated medical care in one convenient location. […]
The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Stagg family, Parents to AJ Saturday, September 19, 2026 Times to be determined Location to be determined. Sebastopol, CA Bring the whole family and join us! You'll have the chance to meet families in the area who share […]