• July Parent University™ Class Presented by Protected Tomorrows

    July Parent University™ Class Presented by Protected Tomorrows Class Seven The Ins and Outs on the Uses of Special Needs Trusts July 9, 2026 12:00 – 1:00 p.m. CST In this exciting session about Special Needs Trusts, Protected Tomorrows will cover: • What kind and when should you set up a Special Needs Trust? How […]

  • Multi-Specialty Clinic for Children with CdLS

    The CdLS Foundation, in partnership with Cohen Children’s Medical Center (CCMC), is pleased to announce a Multi-Specialty Clinic for Children with CdLS on July 20, 2026, at Cohen Children’s Medical Center (CCMC) in New York. Dr. Ian Krantz, Chief of the Division of Medical Genetics, and his team of specialists provide care to children and […]

  • Illinois Family Gathering

    Join families from Illinois and surrounding states for a CdLS Foundation Family Gathering. Graciously hosted by: The Beaumont Family, parents of Annie Saturday, August 1, 2026 2:00 p.m. - 5:00 p.m. CT Burning Bush Community Center 1313 Burning Bush Ln. Mount Prospect, IL 60056 You’ll have the chance to meet families in the area who […]

  • CdLS Foundation August Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for August 6, and we’d love to welcome you. 📅August 6, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from […]

  • August Parent University™ Class Presented by Protected Tomorrows

    August Parent University™ Class Presented by Protected Tomorrows Class Eight Education: Back-to-School Tips August 13, 2026 12:00 – 1:00 p.m. CST “School” can mean many things. In this exciting session about back-to-school tips, Protected Tomorrows will cover: • If your child is young, what is an IEP? • If your child is older, what can […]

  • Northeast Family Gathering

    Graciously hosted by: Jennifer and Nicholas Arp, parents of Jenna Saturday, August 29, 2026 2:00 p.m. - 6:00 p.m. ET The Arp Home Address will be provided in the confirmation email Rexford, NY 12148 Bring your swimsuit and towel to enjoy the pool! Bring the whole family and join us for a casual backyard get-together! […]

  • CdLS Foundation September Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]

  • September Parent University™ Class Presented by Protected Tomorrows

    September Parent University™ Class Presented by Protected Tomorrows Class Nine The Many Faces of Protection September 10, 2026 12:00 – 1:00 p.m. CST In this exciting session, Protected Tomorrows will cover: • How do you best protect what you’ve built for now and for the future? • Do you have the right kind of protection? […]

  • Northwest Region Family Gathering- Northern California

    Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Stagg family, Parents to AJ Saturday, September 19, 2026 12:00 - 4:00 p.m. PT Location 444 Aviation Blvd. Santa Rosa, CA 95403 Bring the whole family and join us! You'll have the chance to meet families in the […]

  • CdLS Foundation Back-to-School Kickoff

    The CdLS Foundation Back-to-School Family Kickoff will be a weeklong virtual experience designed to help CdLS families begin the school year — and the next season of care — with practical tools, trusted guidance, and meaningful connection.  While the event is timed around the back-to-school season, the content will be intentionally broader than school alone. […]

    Free