Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Radionov Family, parents of Kaleb. June 13, 202611 a.m. - 4 p.m. ET Mt. Olivet UMC1082 Community RoadLexington, NC 27295 *A Hoyer lift and adult changing table available at the venue.* Bring the whole family and join […]
The next CdLS Foundation Parent Support Group is scheduled for July 2, and we’d love to welcome you. 📅 July 2, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Healthy Living This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
July Parent University™ Class Presented by Protected Tomorrows Class Seven The Ins and Outs on the Uses of Special Needs Trusts July 9, 2026 12:00 – 1:00 p.m. CST In this exciting session about Special Needs Trusts, Protected Tomorrows will cover: • What kind and when should you set up a Special Needs Trust? How […]
Host: Beaumont FamilyPerson with CdLS: Annie Beaumont Date: August 1stTime: 2-5 PM Location: Burning Bush Community Center1313 Burning Bush Ln.Mount Prospect, IL 60056
The next CdLS Foundation Parent Support Group is scheduled for August 8, and we’d love to welcome you. 📅August 6, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from […]
The CdLS Foundation, in partnership with Shriners Children’s Salt Lake City, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13, 2026, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive, coordinated medical care in one convenient location. […]
August Parent University™ Class Presented by Protected Tomorrows Class Eight Education: Back-to-School Tips August 13, 2026 12:00 – 1:00 p.m. CST “School” can mean many things. In this exciting session about back-to-school tips, Protected Tomorrows will cover: • If your child is young, what is an IEP? • If your child is older, what can […]
Hosts: Jennifer and Nicholas ArpPerson with CdLS: Jenna Arp August 29th 2 – 6 p.m. ET Location:The Arp Home9B Sandpiper LaneRexford, NY Bring your swimsuit and towel to enjoy the pool! Bring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share […]
The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
September Parent University™ Class Presented by Protected Tomorrows Class Nine The Many Faces of Protection September 10, 2026 12:00 – 1:00 p.m. CST In this exciting session, Protected Tomorrows will cover: • How do you best protect what you’ve built for now and for the future? • Do you have the right kind of protection? […]