Exciting news! The New England Golf Classic is going virtual!! Join us for an interactive, new way to continue raising awareness and funds and keeping the tradition going. You can play on any course, with anyone, at any time between May 10 and August 31, 2025, and compete with others across the country. You will have […]
You’re invited to a roll-a-thon in honor of Paige! Bring your favorite wheels – bikes, skates, hoverboards, anything with wheels and get ready to roll! Minimum donation of $5 per person. “Rolling for Paige” is a special fundraiser dedicated to raising awareness about Cornelia de Lange Syndrome (CdLS), a rare genetic disorder. Paige, the inspiration […]
The Arc of Illinois is excited to invite you to their upcoming Family Support Group Webinar, designed especially for parents, family members, and caregivers of loved ones with intellectual and developmental disabilities. This is more than just a webinar — it’s a chance to connect with others who truly understand your journey. Whether you're looking […]
The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, July 3, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]
Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering. Saturday, July 12, 2025 2 – 6 p.m. ET The Arp Home 9B Sandpiper Lane Rexford, NY (9B is on the white mailbox with a long driveway) Graciously Hosted by Jennifer and Nicholas Arp, parents to Jenna. Bring […]
The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, August 7, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]
The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, September 4, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]
The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, October 2, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]
Running for those who cannot! Thirty athletes for over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th at The Bank of America Chicago Marathon. They will go through countless hours of physical and mental training all while raising awareness and funds for the […]
This long-standing Missouri golf outing is one of the CdLS Foundation’s largest fundraisers. Last year’s MCWP & PLM’s 36th Annual Amber Gaines Memorial Golf Classic did not disappoint. 132 golfers enjoyed a day of golf, a light breakfast, lunch and awards dinner at the Tapawingo National Golf Club, over $92,000 was raised! Thank you to […]
