• September Parent University™ Class Presented by Protected Tomorrows

    September Parent University™ Class Presented by Protected Tomorrows Class Nine The Many Faces of Protection September 10, 2026 12:00 – 1:00 p.m. CST In this exciting session, Protected Tomorrows will cover: • How do you best protect what you’ve built for now and for the future? • Do you have the right kind of protection? […]

  • Northwest Region Family Gathering- Northern California

    Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Stagg family, Parents to AJ Saturday, September 19, 2026 Times to be determined Location to be determined. Sebastopol, CA Bring the whole family and join us! You'll have the chance to meet families in the area who share […]

  • CdLS Foundation October Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for October 1, and we’d love to welcome you. 📅 October 1, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents who truly understand […]

  • October Parent University™ Class Presented by Protected Tomorrows

    October Parent University™ Class Presented by Protected Tomorrows Class Ten Employment: Bringing a Sense of Purpose October 8, 2026 12:00 – 1:00 p.m. CST In this exciting session about employment, Protected Tomorrows will cover: • What types of jobs are available for my child in the future? How do I help prepare my child for […]

  • 2026 Bank of America Chicago Marathon

    Cheer on and support our amazing team of 33 athletes from all over the country and Mexico when Team CdLS participates in their 27th year at the Bank of America Chicago Marathon. This talented and diverse group of athletes will meet on October 11th and run 26.2 miles for those who cannot all while raising […]

  • Team CdLS Baltimore Running Festival 2026

    Its Time….. To be a part of Team CdLS Baltimore for the 26th Annual Baltimore Running Festival, taking place on Saturday, October 17, 2026! Our Social Team registration is now open. This exciting event promises a vibrant atmosphere filled with energy and camaraderie. As you lace up your running shoes, you’ll not only be participating […]

  • CdLS Foundation November Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for November 5, and we’d love to welcome you. 📅 November 5, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents who truly understand […]

  • Adolescent and Adult Multidisciplinary Clinic

    Harvey Institute for Human Genetics, Greater Baltimore Medical Center 6701 N. Charles St., Suite 2326, Baltimore, MD, United States

    This Foundation-managed, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore, Maryland. Led since 2001 by Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, the clinic provides families with direct access to nationally […]

  • November Parent University™ Class Presented by Protected Tomorrows

    November Parent University™ Class Presented by Protected Tomorrows Class Eleven Siblings and Future Caregivers: How to Prepare Them November 12, 2026 12:00 – 1:00 p.m. CST The future depends on the decisions we make today. In this exciting session about future caregivers, Protected Tomorrows will cover the important steps to prepare siblings and future caregivers. […]