September 2024
Parent University: RETIRING FOR 3 – HOW TO HAVE ENOUGH FOR YOUR OWN RETIREMENT AND THEIRS, TOO
How much is enough for you, as the caregivers? How much is enough for your child? How to incorporate your child’s plan into your own. What is the most effective way to fund the trust? Life insurance? IRAs? Other? How to plan your own Social Security to benefit your child’s future – Learn a technique to identify your options. Register now
Find out more »CdLS Foundation East Coast Regional Retreat
We're excited to announce the 2024 East Coast Regional Retreat. Mark your calendars! Guided by your input, the CdLS Foundation has reimaged what was the National conference into regional retreats. The 2024 East Coast Regional Retreat will be September 13- 15, 2024, at beautiful Camp Saginaw in Oxford, PA. This two-day event offers educational workshops, a fun-filled and action-packed day of activities for siblings, ample time to socialize with those you know, and a wonderful opportunity to make new friends. …
Find out more »October 2024
Parent University: THE MYRIAD OF RESIDENTIAL OPTIONS – WHAT AND WHERE ARE THEY?
Let’s hear more from people who have creative scenarios – DIY, Campus, Group Homes, Independent Living. Come to this class prepared for the homework you need to do. How do you get comfortable with even starting? Listen and learn from those who have been successful in setting up and finding a solution that worked best for them. Register now
Find out more »2024 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon on Sunday, October 13, 2024. Our only requirement is that you raise $2,200. The CdLS Foundation will be there with you every step of the way, providing you with: Guaranteed race entry The ability to book your hotel reservation at Springhill suites - just…
Find out more »November 2024
Adolescent and Adult Multidisciplinary Clinic
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…
Find out more »Parent University: THE STRESS OF NORMAL LIFE, ADD IN THE HOLIDAYS, FUTURE WORRIES AND HOW DO YOU COPE
Let’s listen to some more professionals that will give us coping mechanisms to help. Send your questions to us in advance to get some good advice shared with the group. Register now
Find out more »Parent University: THE STRESS OF NORMAL LIFE, ADD IN THE HOLIDAYS, FUTURE WORRIES AND HOW DO YOU COPE
“The Gap” is our desire to get to PERFECTION versus recognizing HOW FAR WE HAVE COME! We will use some exercises to walk out of the class with a positive feeling about our SUCCESSES! And…a reality check of what we should work toward in 2025. Register now
Find out more »December 2024
Parent University: LEARNING HOW TO DEAL WITH “THE GAP”
“The Gap” is our desire to get to PERFECTION versus recognizing HOW FAR WE HAVE COME! We will use some exercises to walk out of the class with a positive feeling about our SUCCESSES! And…a reality check of what we should work toward in 2025. Register now
Find out more »