This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations […]

Join families from Irvine and other parts of California for a CdLS Foundation-sponsored Family Gathering. More information to follow!

Hosted by Traci Nishiyama, mother to JacobSaturday, November 8, 202511am-3pmSweet Shade Ability Center15 Sweet ShadeIrvine, CA

We all have differing experiences as we think about the future. The best way to learn is from others. Le’t hear some great ideas and pitfalls to avoid. Share the best things to try, and what you might avoid. This is a HOPE session, and you will learn IT IS possible, but that you are […]

Use GivingTuesday to Support the CdLS Foundation! Mark your calendars for December 2. It is the annual celebration of GivingTuesday, a global movement that inspires people to give, collaborate, and make a difference. This special day is all about turning generosity into action, and it’s the perfect opportunity to support the CdLS Foundation. Whether you […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, December 4, 2025 🕖 7:00 – 8:15 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

How did we do? We will review the different peace of mind points, evaluate our successes and failures and set some goals for next year. HOPE is important on the journey to PEACE OF MIND! Let’s recognize our successes and pat ourselves on the back for them. Let’s identify our areas to concentrate on so […]

Join us at CYJ Retreat Center in Woodcreek, Texas, from May 29 to 31, 2026, for a tranquil weekend retreat with friends who share your unique journey. The registration cost is an all-inclusive, per-person rate encompassing programming such as workshops and “Meet the Experts,” sibling camp, all meals, location facilities, activities, and lodging. Individuals with […]