The next CdLS Foundation Parent Support Group is scheduled for August 8, and we’d love to welcome you. 📅August 8, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from […]
The CdLS Foundation, in partnership with Shriners Children’s Salt Lake City, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13, 2026, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive, coordinated medical care in one convenient location. […]
The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Stagg family, Parents to AJ Saturday, September 19, 2026 Times to be determined Location to be determined. Sebastopol, CA Bring the whole family and join us! You'll have the chance to meet families in the area who share […]
The next CdLS Foundation Parent Support Group is scheduled for October 1, and we’d love to welcome you. 📅 October 1, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents who truly understand […]
Cheer on and support our amazing team of 33 athletes from all over the country and Mexico when Team CdLS participates in their 27th year at the Bank of America Chicago Marathon. This talented and diverse group of athletes will meet on October 11th and run 26.2 miles for those who cannot all while raising […]
Its Time….. To be a part of Team CdLS Baltimore for the 26th Annual Baltimore Running Festival, taking place on Saturday, October 17, 2026! Our Social Team registration is now open. This exciting event promises a vibrant atmosphere filled with energy and camaraderie. As you lace up your running shoes, you’ll not only be participating […]
The next CdLS Foundation Parent Support Group is scheduled for November 5, and we’d love to welcome you. 📅 November 5, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents who truly understand […]
This Foundation-managed, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore, Maryland. Led since 2001 by Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, the clinic provides families with direct access to nationally […]
