International Siblings Day is a special time to celebrate the unique, lifelong bond between brothers and sisters. Siblings of individuals with CdLS play an incredible role, offering love, support, advocacy, and friendship in truly unique ways. We invite you to join us in honoring these amazing relationships by sharing photos of you and your sibling […]
This Foundation-managed, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore, Maryland. Led since 2001 by Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, the clinic provides families with direct access to nationally […]
The next CdLS Foundation Parent Support Group is scheduled for May 7, and we’d love to welcome you. 📅 May 7, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Future Planning This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This meaningful day is about more than awareness; it’s about connection, education, and hope. Families, advocates, healthcare professionals, and supporters unite to share stories, spread knowledge, […]
The next CdLS Foundation Parent Support Group is scheduled for June 4, and we’d love to welcome you. 📅 June 4, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Behavior This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents […]
The next CdLS Foundation Parent Support Group is scheduled for July 2, and we’d love to welcome you. 📅 July 2, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Healthy Living This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
The next CdLS Foundation Parent Support Group is scheduled for August 8, and we’d love to welcome you. 📅August 8, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from […]
The CdLS Foundation, in partnership with Shriners Children’s Salt Lake City, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13, 2026, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive, coordinated medical care in one convenient location. […]
The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]
The next CdLS Foundation Parent Support Group is scheduled for October 1, and we’d love to welcome you. 📅 October 1, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents who truly understand […]