You're invited to a presentation featuring the latest updates from the Social Security Administration! Join us as we explore important new information and highlight the online services offered by Social Security. The webinar will be held on Tuesday, June 3, at noon CT. **Presenter:** Megan Forristall, Area 2 Public Affairs Specialist. We look forward to […]

You scream! I scream! We all scream for ice cream! Meet with friends, enter to win an ice cream party, and learn more about CdLS while supporting Team CdLS in the Bank of America Chicago Marathon this fall. Colin MT Hamilton, Treasurer of the Massaco Chapter of the National Honors Society, an academic merit organization […]

The CdLS Foundation is excited to announce the launch of our Virtual Support Groups for Parents—a new way to connect, share, and support one another. First Session: 🗓 Thursday, June 5, 2025 🕖 7:00 – 8:00 p.m. ET At the CdLS Foundation, we believe no parent should walk this path alone. As caregivers, you are […]

You’re invited to a roll-a-thon in honor of Paige! Bring your favorite wheels – bikes, skates, hoverboards, anything with wheels and get ready to roll! Minimum donation of $5 per person. “Rolling for Paige” is a special fundraiser dedicated to raising awareness about Cornelia de Lange Syndrome (CdLS), a rare genetic disorder. Paige, the inspiration […]

The Arc of Illinois is excited to invite you to their upcoming Family Support Group Webinar, designed especially for parents, family members, and caregivers of loved ones with intellectual and developmental disabilities. This is more than just a webinar — it’s a chance to connect with others who truly understand your journey. Whether you're looking […]

Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face for their child, weighing not only risks and benefits but also the goals of care for their child. Join a panel of experienced parents as they share valuable insights into their decision-making journeys. Discover the factors […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, July 3, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]