BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//CdLS Foundation - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20240101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250510
DTEND;VALUE=DATE:20251001
DTSTAMP:20260405T201705
CREATED:20250306T233308Z
LAST-MODIFIED:20251121T183936Z
UID:8914-1746835200-1759276799@www.cdlsusa.org
SUMMARY:Champions for CdLS Golf Tournament
DESCRIPTION:We are very grateful to every one of you\, our sponsors\, golfers\, and donors\, whose participation and generosity made our recent golf tournament a heartfelt success. Thanks to your support\, we raised an incredible $6\,200 for the CdLS Foundation. \nYour generosity empowers us to continue serving nearly 4\,000 families across the United States and around the world. With your help\, we will continue to fund vital programs and services to our CdLS community. \nYour participation and contributions are making a tangible difference. Although the event is over your continued support can still have a lasting impact on our community. You can donate here. \nThank you for standing with us\, for caring deeply about the CdLS community\, and for helping us deliver hope\, help\, and connection. \nBecause of your support we will continue to reach out\, provide help and give hope to our CdLS Community.\nEven though the course is closed you can still support this event and the CdLS Foundation by donating here: Donate Now! \nInformation for 2026 will be coming soon. If you would like to host a golf tournament in your community please contact Lisa Schroeder\, Events Manager at lschroeder@cdlsusa.org. \nThank you  \n\nThis event was generously sponsored by:
URL:https://www.cdlsusa.org/event/champions-for-cdls-golf-tournament/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/03/logo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250603T120000
DTEND;TZID=UTC:20250603T130000
DTSTAMP:20260405T201705
CREATED:20250521T195255Z
LAST-MODIFIED:20250521T195255Z
UID:9289-1748952000-1748955600@www.cdlsusa.org
SUMMARY:New Updates from the Social Security Administration Webinar
DESCRIPTION:You’re invited to a presentation featuring the latest updates from the Social Security Administration! Join us as we explore important new information and highlight the online services offered by Social Security. \nThe webinar will be held on Tuesday\, June 3\, at noon CT. \n**Presenter:** Megan Forristall\, Area 2 Public Affairs Specialist. \nWe look forward to seeing you there! \nRegister Here.
URL:https://www.cdlsusa.org/event/new-updates-from-the-social-security-administration-webinar/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/05/SSI-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250604T163000
DTEND;TZID=UTC:20250604T203000
DTSTAMP:20260405T201705
CREATED:20250502T171124Z
LAST-MODIFIED:20250502T171327Z
UID:9200-1749054600-1749069000@www.cdlsusa.org
SUMMARY:Ben and Jerry's Giveback Night with Simsbury High School Nation Honor Society
DESCRIPTION:You scream! I scream! We all scream for ice cream!\nMeet with friends\, enter to win an ice cream party\, and learn more about CdLS while supporting Team CdLS in the Bank of America Chicago Marathon this fall.\nColin MT Hamilton\, Treasurer of the Massaco Chapter of the National Honors Society\, an academic merit organization at Simsbury High School\, is excited to partner with the CdLS Foundation not only to fulfill the chapter’s goals of giving back to our surrounding community but to help another organization and their altruistic pursuit of helping those in need. “We have committed ourselves throughout the years to community impact and give back. In order to be inducted into NHS\, members must display qualities of Scholarship\, Leadership\, Character\, and Service\, once inducted\, they are expected to continue activities that fulfill these pillars. On our own\, we organize and run the local blood drive and food pantry donations\, but members are just as likely to be found helping a teacher organize for their class\, tutoring fellow students\, cleaning up invasive species\, or training service dogs!” \n\n\n\nWe hope you will come out and support the CdLS Foundation and the NHS of Simsbury High School. \nCan’t attend\, but still want to support? Click here! 
URL:https://www.cdlsusa.org/event/ben-and-jerrys-giveback-night-with-simsbury-high-school-nation-honor-society/
LOCATION:Ben & Jerry’s: The Shoppes at Farmington Valley\, 110 Albany Turnpike\, Canton\, CT\, 06019\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/05/Ben-and-Jerrys.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250605T190000
DTEND;TZID=UTC:20250605T200000
DTSTAMP:20260405T201705
CREATED:20250528T185630Z
LAST-MODIFIED:20250528T185659Z
UID:9304-1749150000-1749153600@www.cdlsusa.org
SUMMARY:Virtual Support Groups for Parents
DESCRIPTION:The CdLS Foundation is excited to announce the launch of our Virtual Support Groups for Parents—a new way to connect\, share\, and support one another.\nFirst Session:\n🗓 Thursday\, June 5\, 2025\n🕖 7:00 – 8:00 p.m. ET\nAt the CdLS Foundation\, we believe no parent should walk this path alone. As caregivers\, you are the backbone of our community\, and we see you. We understand the emotional and physical challenges that come with your role. \nThese virtual gatherings are here to help you: \n\nConnect with others who understand your journey\nShare and receive meaningful advice\nFeel heard\, supported\, and uplifted\n\nWhether you’re new to the CdLS community or have been walking this road for years\, we invite you to join us for an hour of connection\, understanding\, and encouragement. You belong here. \nSessions will be held on the first Thursday of every month and dedicated to connection and support.\n \nRegister Here! 
URL:https://www.cdlsusa.org/event/9304/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/05/Virtual-Support-Groups-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250622T110000
DTEND;TZID=UTC:20250622T110000
DTSTAMP:20260405T201705
CREATED:20250411T212901Z
LAST-MODIFIED:20250516T203413Z
UID:9117-1750590000-1750590000@www.cdlsusa.org
SUMMARY:Rolling for Paige
DESCRIPTION:You’re invited to a roll-a-thon in honor of Paige! Bring your favorite wheels – bikes\, skates\, hoverboards\, anything with wheels and get ready to roll! Minimum donation of $5 per person. \n“Rolling for Paige” is a special fundraiser dedicated to raising awareness about Cornelia de Lange Syndrome (CdLS)\, a rare genetic disorder. Paige\, the inspiration behind this event\, was diagnosed with CdLS after undergoing open-heart surgery at just 5 months old. Over her 18 years\, she has had more than 15 surgeries and continues to navigate developmental and health challenges related to the diagnosis. \nPaige’s Pastries will be available for purchase. You can also purchase a t-shirt and show your support for Paige and the CdLS Foundation. All proceeds will benefit the CdLS Foundation. Your support and participation can make a difference. Come roll with us and help raise awareness for Cornelia de Lange Syndrome … Let’s Roll! \nCan’t make it but want to contribute? Click here to support Rolling for Paige. 
URL:https://www.cdlsusa.org/event/rolling-for-paige/
LOCATION:Licht Park\, 30100 Campbell Ave\, Warren\, MI\, 48093
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/04/Rolling-for-Paige.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250624T170000
DTEND;TZID=UTC:20250624T180000
DTSTAMP:20260405T201705
CREATED:20250521T195558Z
LAST-MODIFIED:20250610T191311Z
UID:9290-1750784400-1750788000@www.cdlsusa.org
SUMMARY:The Arc of IL Family Support Group Webinar!
DESCRIPTION:The Arc of Illinois is excited to invite you to their upcoming Family Support Group Webinar\, designed especially for parents\, family members\, and caregivers of loved ones with intellectual and developmental disabilities. \nThis is more than just a webinar — it’s a chance to connect with others who truly understand your journey. Whether you’re looking for support\, resources\, or simply a place to be heard\, this community is here for you. \nRegister Here!
URL:https://www.cdlsusa.org/event/the-arc-of-il-family-support-group-webinar/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/05/ARC-Family-Support-Group.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250625T120000
DTEND;TZID=UTC:20250625T130000
DTSTAMP:20260405T201705
CREATED:20250618T214040Z
LAST-MODIFIED:20250618T214040Z
UID:9412-1750852800-1750856400@www.cdlsusa.org
SUMMARY:Parent Perspectives: Insights into Medical Decision-Making
DESCRIPTION:Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face for their child\, weighing not only risks and benefits but also the goals of care for their child. Join a panel of experienced parents as they share valuable insights into their decision-making journeys. Discover the factors that influenced their choices\, the challenges they faced\, and the lessons they learned along the way. Hear how they worked with their child’s care team and ultimately made their decisions. Don’t miss this opportunity to learn from real-life experiences and gather practical advice to support your own decision-making process. \nThis session will be moderated by Gabrielle Conecker\, who has more than 20 years of experience in advocating for and advancing public health. \nThis event will take place on Wednesday\, June 25th at 12:00 pm ET (11:00 am CT\, 10:00 am MT\, 9:00 am PT). \nRegister here
URL:https://www.cdlsusa.org/event/parent-perspectives-insights-into-medical-decision-making/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/06/Parent-Perspectives-Insights-into-Medical-Decision-Making.png
END:VEVENT
END:VCALENDAR