CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. […]
You spend so much time and effort creating the Future Life Care Plan for your family member with special needs. Your estate and financial plans cannot be like everyone else’s. You need to have special documents, very specific language with beneficiaries, special thought processes for your own retirement planning, specific tools to use that are […]
The SFN Dads Virtual Conference is for dads raising children with special needs, interested in: - developing their fathering skills - gathering resources for their child and family, and - meeting and networking with like- minded dads Some of the guest speakers will include: Mary Anne Ehlert, David Hirsch, Joe Mantegna, Wayne Messmer, and […]
Join the Local Planning Committee for a virtual race benefiting CdLS. Cornelia de Lange Syndrome or CdLS is a rare genetic syndrome that causes a broad range of physical, cognitive, and medical challenges for the diagnosed individual. Every two years the CdLS Foundation hosts a Family Conference where individuals with CdLS and their families from […]
Please join us for a California Virtual Family Gathering. Hosted by the CdLS Foundation Family Service and RCs Karen Prada, Melissa Staggs, Susan Drexler and Dena Davis. Send a photo via email if you would like your child/family in the slide show. Saturday, June 5th, 11 a.m. - 1 p.m. PST. This gathering will be […]