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X-WR-CALNAME:CdLS Foundation
X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
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DTSTART:20200101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20210508
DTEND;VALUE=DATE:20210509
DTSTAMP:20260403T165613
CREATED:20210206T000001Z
LAST-MODIFIED:20210206T000117Z
UID:3482-1620432000-1620518399@www.cdlsusa.org
SUMMARY:CdLS Awareness Day
DESCRIPTION:CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed\, little-known genetic syndrome. Parents\, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. \nFor more information contact Gabrielle Nadeau
URL:https://www.cdlsusa.org/event/cdls-awareness-day/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210513T200000
DTEND;TZID=UTC:20210513T200000
DTSTAMP:20260403T165613
CREATED:20201228T185104Z
LAST-MODIFIED:20201228T185104Z
UID:3393-1620936000-1620936000@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: Integrating Special Needs with Your Estate & Financial Plans
DESCRIPTION:You spend so much time and effort creating the Future Life Care Plan for your family member with special needs.  Your estate and financial plans cannot be like everyone else’s.  You need to have special documents\, very specific language with beneficiaries\, special thought processes for your own retirement planning\, specific tools to use that are not always widely known by professionals\, extra special people and teams that will support your family member’s future and more.  We will work through a checklist of many of the unique needs you will want to include in your planning.  This class will highlight the many opportunities you have to make the future look brighter.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-integrating-special-needs-with-your-estate-financial-plans/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210515T083000
DTEND;TZID=UTC:20210515T140000
DTSTAMP:20260403T165613
CREATED:20210504T192554Z
LAST-MODIFIED:20210504T192728Z
UID:3777-1621067400-1621087200@www.cdlsusa.org
SUMMARY:SFN Dads Virtual Conference
DESCRIPTION:The SFN Dads Virtual Conference is for dads raising children with special needs\, interested in: \n\n\n    – developing their fathering skills\n– gathering resources for their child and family\, and\n– meeting and networking with like- minded dads \n\nSome of the guest speakers will include: Mary Anne Ehlert\, David Hirsch\, Joe Mantegna\, Wayne Messmer\, and Rob Johnson. \n\n\nSome agenda topics will include: Being Emotionally Present\, Housing & Residential Issues\, Sibling & Family Balance\, Respite & Marriage\, Grieving the Anticipated Life\, Estate & Financial Planning\, Education Beyond High School\, Losing a Child\, and Overcoming Denial. \n\nRegister Here
URL:https://www.cdlsusa.org/event/sfn-dads-virtual-conference/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20210516
DTEND;VALUE=DATE:20210517
DTSTAMP:20260403T165613
CREATED:20210429T212448Z
LAST-MODIFIED:20210429T222945Z
UID:3762-1621123200-1621209599@www.cdlsusa.org
SUMMARY:CdLS Race to Tulsa
DESCRIPTION:Join the Local Planning Committee for a virtual race benefiting CdLS. Cornelia de Lange Syndrome or CdLS is a rare genetic syndrome that causes a broad range of physical\, cognitive\, and medical challenges for the diagnosed individual. Every two years the CdLS Foundation hosts a Family Conference where individuals with CdLS and their families from around the world can attend to learn about CdLS\, how to care for individuals with CdLS\, seek medical advice with multiple specialists\, and bond with other families similar to their own. All proceeds from this virtual race will be donated to the 2022 Family Conference located in Tulsa\, OK. \nThis virtual race is a fun run with different race options (1K\, 5K\, 10K) making it a perfect activity for individuals or the whole family. Some great swag is included such as a custom medal and printable race bib. You can post your results and upload photos online to share your experience. Don’t want to walk/run\, but still contribute to this great cause? Donations can be made using the donation button and are always welcomed! Grab your friends and family to race from your place to Tulsa\, OK! \nIf you have any questions about this race\, please contact the race director at cdlsconferencelpc@gmail.com.
URL:https://www.cdlsusa.org/event/cdls-race-to-tulsa/
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