Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 5, 2019 The CdLS Foundation will be there with you every step of the way, providing you […]

This webinar will discuss: • Self-injury • Impulse control • Destruction of property • Determining the appropriate consequences • Treatment options (ABA, etc.) or professional resources for families Presenter: Julia O’Connor, Ph.D., is a Clinical Psychologist and the Director of Day Treatment Services at the Neurobehavioral Unit at Kennedy Krieger Institute. Her specialty is behavior […]

Join us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich, MA. Participants will enjoy 18 holes of golf, brunch, dinner and an opportunity to win both skill and door prizes. Register for the golf tournament […]

This webinar will provide an overview of neurodevelopmental challenges, including approaches to treatment, in Cornelia de Lange syndrome (CdLS). Individuals with CdLS can be affected by a number of developmental disorders, including intellectual disability, autism spectrum disorder, language disorder, ADHD, aggression, repetitive self-injurious behaviors, anxiety, and depression. This webinar will discuss each of these domains […]

Families are asked to bring a dish to share potluck style. Everyone is welcome! Please RSVP by 7.19.19 with the number of adults/children that will be attending You may email Paula Messer at pmroncales@verizon.net or Emily Muñoz at elbrummitt@gmail.com or Whitney Rinaldi, Family Service Coordinator at the CdLS Foundation 1.800.753.2357 or Familyservice@cdlsusa.org

This webinar will: Identify malrotation Discuss signs of volvulus Discuss bowel obstruction Discuss pancreatitis Review treatment/care approaches to the above Presenter: Carol Potter, MD, Nationwide Children's Hospital

Hosted by the Rauba Family For more information contact Lynn Audette at families@CdLSusa.org

With the National Family Conference approaching in just under 10 months, now is the time to plan and save. Tasha Howland, Life Coach and mom to Peyton, will offer tips and strategies that you may find helpful to cover your expenses for Conference. She will also offer some fun ideas to help you get started […]