Aubrie’s Army Fundraiser for the CdLS Foundation

Please join Aubrie's Army for an afternoon fundraiser to raise awareness and funds for CdLS. Activities include a silent auction, a 1-mile fun run or walk option, light refreshments, and raffle prices. Bid winners will be announced at 4:30 PM. Fun Run tickets are $25 per person. The fun run event starts at 3 PM, […]

Planning For The Future

Sponsored by: Willow Creek Church, South Barrington Speaker: Mary Anne Ehlert, President & Founder, Protected Tomorrows, Inc. Come join us at Willow Creek Church for Mary Anne Ehlert’s presentation: “Planning For The Future.” This presentation will be uplifting, interactive and educational, as well as provide a good basic understanding of some of the important facts. […]

Wisconsin Family Gathering

Cornerstore Baptist Church 11:30am- 2:30pm. S3111 Ableman Road Reedsburg, WI 53959 Hosted by Brandi and Chamuel Marvici, parents of Reagan.

2023 Bank of America Chicago Marathon

The CdLS Foundation will once again have a fantastic Team CdLS running in Chicago! The 2023 Bank of America Chicago Marathon has been officially scheduled for October 8. Team CdLS will converge on Chicago this Fall, and to run for our precious children and adults with CdLS and their families. Team CdLS - Chicago is […]

2023 MCWP & PLM Amber Gaines Memorial Golf Classic

The CdLS Foundation’s longest running major event - the MCWP & PLM Amber Gaines Memorial Golf Classic – is kicking off its 35th year on Monday, October 9, 2023, at the beautiful Tapawingo National Golf Course in St. Louis, MO. Registration and lunch begin at 11 AM with a 12:30 PM shotgun start, followed by […]

2023 Parent University™ Class 10: Financial Planning for the Whole Family: Now and In the Future

Sponsored by: Protected Tomorrows’ 2023 Parent University™ Speaker: Mary Anne Ehlert, President & Founder, Protected Tomorrows, Inc. Description: Protected Tomorrows’ 2023 Parent University™ brings you our tenth in a series of educational webinars… “Financial Planning for the Whole Family: Now and In the Future” Our financial planning needs to be different. We have to take […]

2023 Baltimore Running Festival

Join Team CdLS - Baltimore for a chance to run through the scenic Inner Harbor waterfront area, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS).Team CdLS - Baltimore is in the process of building our team of runners for the big event. […]

Texas Family Gathering

Windhaven Meadows Park - Pavilion 10 a.m. - 2 p.m. CDT 5400 Windhaven ParkwayPlano, TX 75093 Hosted by Tiffany Hendricks, mom to Tristen and Olivia; Bailey Woods, mom to Carson.

2023 Walk for Will and Hope

Join us for the 2023 Walk for Will & Hope on Sunday, October 15, at Stony Creek Metropark in Shelby Township. We’ll walk two miles to raise funds for the CdLS Foundation. The walk is named after Will and Hope Kurth, who were both born with Cornelia de Lange Syndrome (CdLS), a rare genetic condition […]

Iowa Family Gathering

Cutty’s Okoboji Resort Club 12pm – 5pm. 1528 Highway 86 Spirit Lake, IA 51360 Hosted by Kate Shaw, sister to Kimberly.