For a Community Event to support Team CdLS athletes Sam, Kerry, and Dannielle in the Bank of America Chicago Marathon this fall. For more information, please contact Lisa Schroeder or […]

Grief is naturally a parent’s constant companion, from diagnosis – or lack thereof – onwards, including into bereavement. Psychologist Wendy Lichenthal, PhD is both a grief researcher and a clinician, […]

What are the options out there? Who will do the driving if you are not around? Are there any companies creating solutions to solve this need? Register now

Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has […]

Finding resources and organizing information are two common struggles for many parents in our Network. But great news – CPN recently discovered two amazing tools that promise to make these […]

Please join us! CdLS Awareness Dinner & Fundraiser Event Honoring Kavin Mistry Meet Kavin, my remarkable cousin whose journey with Cornelia de Lange Syndrome has been one of resilience and […]

How much is enough for you, as the caregivers? How much is enough for your child? How to incorporate your child’s plan into your own. What is the most effective […]

We're excited to announce the 2024 East Coast Regional Retreat.     Mark your calendars!   Guided by your input, the CdLS Foundation has reimaged what was the National conference into regional retreats. […]

Come meet the faces BEHIND Courageous Parents Network, as well as some of the parents and providers IN the Network. (That includes you, btw.) Spend an hour with us talking […]

Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has […]