Parent University: The Recipe for Financial Success

There are a myriad of insurance plans to understand. Health insurance, life insurance, disability insurance, long term care insurance – what to use, when? What makes sense? The ABLE account rules are so confusing, and you don’t want to make a mistake. We will review the basics of the ABLE account and how to select […]

Parent University: Your Child Is Aging Out … What Now?

Once your child is 22, they will start receiving social security. Now what? Where will your child live? Where will they work? Navigating the transition period can be overwhelming but also exciting. It’s not just about the place, it’s about the right home, continuing education, job opportunities, recreation, and the rest that makes life safe […]

2020 Bank of America Chicago Marathon

Chicago, IL

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 11, 2020 The CdLS Foundation will be there with you every step of the way, providing you […]

Parent University: Retirement Planning – A Family Affair

Saving for the long term, understanding all of the opportunities and pitfalls, and knowing how family coordinated plans are key to our success is not often discussed. Understand the questions to ask, the numbers to crunch, and the ways we need to work together in our planning to be successful.

CdLS Foundation UK & Ireland: CdLS Autumn Virtual Conference

The CdLS Foundation of UK & Ireland is unable to hold physical, in-person conference this year, they are offering a virtual conference experience instead. They will have keynote presentations followed by live Q&A sessions after each, where you get to ask specific questions of our experts. With some familiar speakers and a new face or […]

Virtual Multidisciplinary Clinic For Adolescents And Adults

Harvey Institute for Human Genetics, Greater Baltimore Medical Center 6701 N. Charles St., Suite 2326, Baltimore, MD, United States

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. […]