Join families from California for a CdLS Foundation-sponsored Family Gathering. Saturday, November 8, 2025 11:00 a.m. - 3:00 p.m. P.T. Graciously hosted by: Traci, mother to Jacob Weber Sweet Shade […]

Join CPN and chaplain and researcher Amanda Borchik, MDiv, BCC to learn about the ways children express their unique spirituality and to discuss ways that we as parents, caregivers and […]

Honoring Our Love: Navigating Grief During the Holidays A Supportive Gathering for Parents Who Have Lost a Child with CdLS The holiday season is often described as a time of […]

We all have differing experiences as we think about the future. The best way to learn is from others. Le’t hear some great ideas and pitfalls to avoid. Share the […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. The November Support Group topic will be […]

Health Insurance is changing …are you ready? Join NORD on November 19 at 2:00PM EST for a webinar to help members of the rare disease community understand what to look […]

Use GivingTuesday to Support the CdLS Foundation! Mark your calendars for December 2. It is the annual celebration of GivingTuesday, a global movement that inspires people to give, collaborate, and […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, December 4, 2025 🕖 7:00 […]

How did we do? We will review the different peace of mind points, evaluate our successes and failures and set some goals for next year. HOPE is important on the […]

We know how much you carry every day — appointments, school meetings, medications, behaviors, and the emotional weight of loving someone with CdLS. It’s a lot, and you don’t have […]