Events

Join families from Texas and surrounding states for a CdLS Foundation Family Gathering. Sunday, October 19, 2025 11:00 a.m. - 2:00 p.m. CT Graciously hosted by: Tiffany, mom to Tristan […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Join us for the Cornelia de Lange Syndrome Foundation's 11th Scientific Symposium Toward Therapy for Chromatin Disorders: CdLS and Beyond Friday, November 7, 2025 8:30 a.m. - 5:00 p.m. PT […]

Join families from California for a CdLS Foundation-sponsored Family Gathering. Saturday, November 8, 2025 11:00 a.m. - 3:00 p.m. P.T. Graciously hosted by: Traci, mother to Jacob Weber Sweet Shade […]

Join CPN and chaplain and researcher Amanda Borchik, MDiv, BCC to learn about the ways children express their unique spirituality and to discuss ways that we as parents, caregivers and […]

Honoring Our Love: Navigating Grief During the Holidays A Supportive Gathering for Parents Who Have Lost a Child with CdLS The holiday season is often described as a time of […]

We all have differing experiences as we think about the future. The best way to learn is from others. Le’t hear some great ideas and pitfalls to avoid. Share the […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. The November Support Group topic will be […]

Health Insurance is changing …are you ready? Join NORD on November 19 at 2:00PM EST for a webinar to help members of the rare disease community understand what to look […]

Use GivingTuesday to Support the CdLS Foundation! Mark your calendars for December 2. It is the annual celebration of GivingTuesday, a global movement that inspires people to give, collaborate, and […]