CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors […]

Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 30th Annual New England Golf Classic to be held on Monday, MAY 22, 2023! This popular […]

Join families from Illinois for a CdLS Foundation Sponsored Family Gathering. Graciously hosted by Charyn Beaumont, June 25, 2023 2-5pm PM CST at the Burning Bush Community Center in Mount […]

Join us for a CdLS Family GatheringSaturday August 5, 202310:30 - 12:30Christ Community Church20600 W 119th StreetOlathe, KS 66061Hosted by Ashley and Matt Franck, parents to Sage. RSVP mattandashley28@gmail.comA light […]

Protected Tomorrows’ 2023 Parent University™ brings you our ninth in a series of educational webinars… “Don’t Stress Out: Finding Professionals to Help” Our guest speakers will talk about the stress […]

Sponsored by: Willow Creek Church, South Barrington Speaker: Mary Anne Ehlert, President & Founder, Protected Tomorrows, Inc. Come join us at Willow Creek Church for Mary Anne Ehlert’s presentation: “Planning […]

Cornerstore Baptist Church 11:30am- 2:30pm. S3111 Ableman Road Reedsburg, WI 53959 Hosted by Brandi and Chamuel Marvici, parents of Reagan.

The CdLS Foundation will once again have a fantastic Team CdLS running in Chicago! The 2023 Bank of America Chicago Marathon has been officially scheduled for October 8. Team CdLS […]