Many runners say that running has changed their lives. Team CdLS runners say that they changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon on Sunday, October 13, 2024. We are so excited to announce that we have an amazing team of 23 […]
The Amber Gaines Memorial Golf Classic is scheduled for Monday, October 14th in St. Louis, MO. Registration and lunch begin at 11am with a 12:30pm shotgun start, followed by cocktails, dinner and prizes at 5:30pm. This long-standing Missouri golf outing is one of the CdLS Foundation’s largest fundraisers. MCWP & PLM’s 36th Annual Amber Gaines […]
Team CdLS members will surely have a unique and memorable experience as we tour every city corner and raise $15,000 for the CdLS Foundation. Join us as we run or walk and enjoy the scenic view of Charm City’s famous landmarks. For more information contact Lisa Schroeder at 860.899.1227.
Neurological diseases are often complex, and life, including decision-making, can be hard to navigate in the face of uncertainty about how the future may unfold. Join us for a discussion of how parents of children with neurological conditions can feel empowered to impact the things under their control, mitigate risk, and feel grounded in their […]
Saddle up and join us …… At Carters Arena in Chiefland, FL, we will have some Halloween-themed rodeo fun while raising awareness and funds for the CdLS Foundation. Come dressed in your favorite costume and enjoy some treats. There will be a costume contest during intermission. The Carter family has been in the rodeo business […]
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations […]
Mark your calendars for this upcoming virtual social group meetup on November 12th! During this meetup we connect with siblings of individuals with disabilities. This is a great opportunity to meet other siblings around the state of Missouri.
Join us as we sit down with Bobbie Thompson, Executive Director of the Fox Valley Advance Care Planning Partnership. In this interview-style event, we will help you learn more about why getting a Power of Attorney establish (for everyone) is so important. This event will be follow up by an in-person workshop in February where […]
Let’s listen to some more professionals that will give us coping mechanisms to help. Send your questions to us in advance to get some good advice shared with the group. Register now
Saddle up and join us! Only two Bulls and Barrles Rodeos left and you dont want to miss the fun and excitement. Hollywood Harris will be there to entertain the crowd. Come out, have some fun and support the CdLS community. At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness […]
