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  • 2019 TD Five Boro Bike Tour

    New York City

    Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 5, 2019 The CdLS Foundation will be there with you every step of the way, providing you […]

  • How to Address Challenging Behaviors Webinar

    This webinar will discuss: • Self-injury • Impulse control • Destruction of property • Determining the appropriate consequences • Treatment options (ABA, etc.) or professional resources for families Presenter: Julia O’Connor, Ph.D., is a Clinical Psychologist and the Director of Day Treatment Services at the Neurobehavioral Unit at Kennedy Krieger Institute. Her specialty is behavior […]

  • Northeast Region Family Gathering

    De Hart Community Center 120 Burnett Ave, Maplewood, NJ, United States

    Hosted by Karen Aschenbrenner and Robert Boneberg, parents of Alex

  • New England Charity Golf Tournament

    Ipswich Country Club 148 Country Club Way, Ipswich, MA, United States

    Join us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich, MA. Participants will enjoy 18 holes of golf, brunch, dinner and an opportunity to win both skill and door prizes. Register for the golf tournament […]

  • Neurodevelopmental Disorders and Behavioral Management in CdLS Webinar

    This webinar will provide an overview of neurodevelopmental challenges, including approaches to treatment, in Cornelia de Lange syndrome (CdLS). Individuals with CdLS can be affected by a number of developmental disorders, including intellectual disability, autism spectrum disorder, language disorder, ADHD, aggression, repetitive self-injurious behaviors, anxiety, and depression. This webinar will discuss each of these domains […]

  • Virginia Family Gathering

    Lambert’s Point Rec Center 4100 Bowdens Ferry Rd., Norfolk, VA, United States

    Families are asked to bring a dish to share potluck style. Everyone is welcome! Please RSVP by 7.19.19 with the number of adults/children that will be attending You may email Paula Messer at [email protected] or Emily Muñoz at [email protected] or Whitney Rinaldi, Family Service Coordinator at the CdLS Foundation 1.800.753.2357 or [email protected]