Global Genes invites you to join us for the 8th and final session of our year-long virtual patient summit. Knowing The Rights for your RARE Child, (Or Yourself) 📅 Thursday, […]

We are delighted to invite you to become a part of Team CdLS Baltimore for the 25th Annual Baltimore Running Festival, taking place on Saturday, October 18, 2025! This exciting […]

Time: Registration begins at 9:30; walk begins at 10. - No advance registration required. - 2-mile walk on Stony's paved path at your own pace. We'll have coffee, donuts, bagels […]

Join families from Texas and surrounding states for a CdLS Foundation Family Gathering. Sunday, October 19, 2025 11:00 a.m. - 2:00 p.m. CT Graciously hosted by: Tiffany, mom to Tristan […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Join families from California for a CdLS Foundation-sponsored Family Gathering. Saturday, November 8, 2025 11:00 a.m. - 3:00 p.m. P.T. Graciously hosted by: Traci, mother to Jacob Weber Sweet Shade […]

Join CPN and chaplain and researcher Amanda Borchik, MDiv, BCC to learn about the ways children express their unique spirituality and to discuss ways that we as parents, caregivers and […]

Honoring Our Love: Navigating Grief During the Holidays A Supportive Gathering for Parents Who Have Lost a Child with CdLS The holiday season is often described as a time of […]

We all have differing experiences as we think about the future. The best way to learn is from others. Le’t hear some great ideas and pitfalls to avoid. Share the […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. The November Support Group topic will be […]