Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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October 2024

Bulls and Barrels Series

October 26 @ 7:00 pm - 9:00 pm

Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all…

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November 2024

Adolescent and Adult Multidisciplinary Clinic

November 2 @ 8:30 am - 3:00 pm

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…

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Parent University: THE STRESS OF NORMAL LIFE, ADD IN THE HOLIDAYS, FUTURE WORRIES AND HOW DO YOU COPE

November 14 @ 1:00 pm - 4:00 pm

Let’s listen to some more professionals that will give us coping mechanisms to help. Send your questions to us in advance to get some good advice shared with the group. Register now

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Parent University: THE STRESS OF NORMAL LIFE, ADD IN THE HOLIDAYS, FUTURE WORRIES AND HOW DO YOU COPE

November 14 @ 1:00 pm - 2:00 pm

“The Gap” is our desire to get to PERFECTION versus recognizing HOW FAR WE HAVE COME! We will use some exercises to walk out of the class with a positive feeling about our SUCCESSES! And…a reality check of what we should work toward in 2025. Register now

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Bulls and Barrels Series

November 16 @ 7:00 pm - 9:00 pm

Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all…

Find out more »

December 2024

Parent University: LEARNING HOW TO DEAL WITH “THE GAP”

December 12 @ 1:00 pm - 2:00 pm

“The Gap” is our desire to get to PERFECTION versus recognizing HOW FAR WE HAVE COME! We will use some exercises to walk out of the class with a positive feeling about our SUCCESSES! And…a reality check of what we should work toward in 2025. Register now

Find out more »