Today, many people with special needs live in some type of community setting.  With many housing options to choose from, how do you choose the right one for your child.  We will discuss many of the options available: CILA, group home, living at home with parents or other family members, single family home with other adults funded by the parents?

A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet the race’s requirements to: Commit to raise a minimum of $2,500 for individuals with CdLS…

We have worked all year to take next steps.  But it is easy to get caught in THE GAP. Sometimes, when we are working toward a big goal, we only see all that is still in front of us. Let’s turn around and review the whole year and see how far you have come in your planning and let’s close THE GAP. You will then see the real progress you have made for your family’s future. Then you can be…

Researchers and scientists around the nation are working to change the future of CdLS. The Foundation is the hub that brings them all together. A unique way that researchers get to share their findings with each other and clinicians is the biennial Scientific and Educational Symposium, sponsored by the CdLS Foundation. Symposium brings together new and seasoned researchers to present and publish current and new information related to CdLS and broaden their collective knowledge. This prestigious 2-day event precedes the…