Running for those who cannot! Thirty athletes from all over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th […]

This long-standing Missouri golf outing is one of the CdLS Foundation’s largest fundraisers. Last year’s MCWP & PLM’s 36th Annual Amber Gaines Memorial Golf Classic did not disappoint. 132 golfers […]

We are delighted to invite you to become a part of Team CdLS Baltimore for the 25th Annual Baltimore Running Festival, taking place on Saturday, October 18, 2025! This exciting […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Join families from Irvine and other parts of California for a CdLS Foundation-sponsored Family Gathering. More information to follow!

We all have differing experiences as we think about the future. The best way to learn is from others. Le’t hear some great ideas and pitfalls to avoid. Share the […]

Use GivingTuesday to Support the CdLS Foundation! Mark your calendars for December 2. It is the annual celebration of GivingTuesday, a global movement that inspires people to give, collaborate, and […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, December 4, 2025 🕖 7:00 […]

How did we do? We will review the different peace of mind points, evaluate our successes and failures and set some goals for next year. HOPE is important on the […]

Join us at CYJ Retreat Center in Woodcreek, Texas, from May 29 to 31, 2026, for a tranquil weekend retreat with friends who share your unique journey. The registration cost […]