Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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October 2021

Missouri Charity Golf Tournament

October 11
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Protected Tomorrows, Parent University: What Residential Option Is Right for Your Family?

October 21 @ 8:00 pm

Today, many people with special needs live in some type of community setting.  With many housing options to choose from, how do you choose the right one for your child.  We will discuss many of the options available: CILA, group home, living at home with parents or other family members, single family home with other adults funded by the parents?

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November 2021

TCS New York City Marathon

November 7

A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet the race’s requirements to: Commit to raise a minimum of $2,500 for individuals with CdLS…

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Protected Tomorrows, Parent University: 2021 Parent University™ – A Year in Review

November 18 @ 8:00 pm

We have worked all year to take next steps.  But it is easy to get caught in THE GAP. Sometimes, when we are working toward a big goal, we only see all that is still in front of us. Let’s turn around and review the whole year and see how far you have come in your planning and let’s close THE GAP. You will then see the real progress you have made for your family’s future. Then you can be…

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June 2022

CdLS Foundation 10th Biennial Scientific & Educational Symposium on Cornelia de Lange Syndrome and Cohesin

June 22, 2022 - June 23, 2022

Researchers and scientists around the nation are working to change the future of CdLS. The Foundation is the hub that brings them all together. A unique way that researchers get to share their findings with each other and clinicians is the biennial Scientific and Educational Symposium, sponsored by the CdLS Foundation. Symposium brings together new and seasoned researchers to present and publish current and new information related to CdLS and broaden their collective knowledge. This prestigious 2-day event precedes the…

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CdLS Foundation Biennial National Family Conference

June 23, 2022 - June 26, 2022

Join us for the Cornelia de Lange Syndrome (CdLS) Foundation National Family Conference, from June 23 to June 26, 2022, in Tulsa, OK. Attendees will have the chance to gain knowledge on how to best care for their loved one and meet other families facing similar challenges. Individuals with CdLS receive free head-to-toe consultations with experts from a range of health and educational fields. Not only will attendees be better equipped to face challenges throughout their loved ones’ lives, but…

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