Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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February 2022

Lights of Love for our CdLS Angels

February 12, 2022

February 12th is CdLS Remembrance Day, we ask everyone, everywhere, to light a candle in remembrance of each and every one of our loved ones who are no longer with us. Sadly, more of individuals with CdLS have gained their wings in the past year, and we want to use this worldwide event to recognize and honor them.

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Rare Disease Day

February 28, 2022

Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. For more information, contact Gabrielle Nadeau.

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April 2022

Multidisciplinary Clinic for Adolescents and Adults

April 2, 2022

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…

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May 2022

National CdLS Awareness Day

May 14, 2022

CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. For more information contact Gabrielle Nadeau

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June 2022

CdLS Foundation 10th Biennial Scientific & Educational Symposium on Cornelia de Lange Syndrome and Cohesin

June 22, 2022 - June 23, 2022

Researchers and scientists around the nation are working to change the future of CdLS. The Foundation is the hub that brings them all together. A unique way that researchers get to share their findings with each other and clinicians is the biennial Scientific and Educational Symposium, sponsored by the CdLS Foundation. Symposium brings together new and seasoned researchers to present and publish current and new information related to CdLS and broaden their collective knowledge. This prestigious 2-day event precedes the…

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CdLS Foundation Biennial National Family Conference

June 23, 2022 - June 26, 2022

Join us for the Cornelia de Lange Syndrome (CdLS) Foundation National Family Conference, from June 23 to June 26, 2022, in Tulsa, OK. Attendees will have the chance to gain knowledge on how to best care for their loved one and meet other families facing similar challenges. Individuals with CdLS receive free head-to-toe consultations with experts from a range of health and educational fields. Not only will attendees be better equipped to face challenges throughout their loved ones’ lives, but…

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November 2022

Multidisciplinary Clinic for Adolescents and Adults

November 5, 2022

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…

Find out more »