CdLS Foundation
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10 events found.

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Today
  • December 2024
  • Tue 24
    December 24, 2024 @ 8:00 am - 5:00 pm

    December Virtual Meet Up, Casual “Pop-In”

    Save the date for our monthly virtual Meet Up which is of a more casual style focused on connection, collaboration and support. Bring your questions or life experience to the […]

  • January 2025
  • Sat 25
    January 25 @ 7:00 pm - 9:00 pm

    Bulls and Barrels Series

    This is it! The final Bulls and Barrels Event of the seriesPrize Buckles will be awarded, and Hollywood Harris will be there to entertain the crowd– you don’t want to […]

  • February 2025
  • Wed 12
    February 12 @ 11:00 am - 12:00 pm

    International CdLS Remembrance Day

    Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives, and friends feel a tremendous loss and often have difficulty understanding why. It is so […]

  • Thu 27
    February 27 @ 8:00 pm - 9:00 pm

    Being My Child’s Protector, Advocate, and Decision-Maker in the NICU Webinar

    Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening medical issues and begin their lives in the NICU, everything […]

  • March 2025
  • Sat 1
    March 1 - March 31

    Stop and Shop Community Bag Program

    For the entire month of March, when you purchase a $2.50 reusable Community Bag at the Stop & Shop located at 498 Bushy Hill Road, Simsbury, CT, $1 is donated […]

  • Mon 10
    March 10 @ 8:00 pm - 9:00 pm

    Supporting Your Family’s Wishes: The Value of Advance Directives and Preparing for Complex Medical Decisions Webinar

    Please join us to explore how completing healthcare advance directives for/with your child can support your family’s goals and wishes. We will discuss the importance of discussing and documenting healthcare […]

  • Wed 12
    March 12

    Multi-Specialty Clinic for children with CdLS at Shriners Children’s Salk Lake City

    Multi-Specialty Clinic for children with CdLS will be held on March 12, 2025, at Shriners Children's Salt Lake City. The CdLS Foundation and Shriners Children's Salt Lake City have a […]

  • April 2025
  • Sat 12
    April 12

    Adolescent and Adult Multidisciplinary Clinic

    This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

  • Sat 12
    April 12 @ 11:00 am - 2:00 pm

    NORD (National Organization for Rare Disease ) Color Run for CdLS

    Join us for a new, fun event to raise awareness and funds for our CdLS community. The Eckerd College Science Outreach Club has recently established a Students for Rare chapter affiliated with […]

  • Wed 23
    April 23 @ 8:00 pm - 9:00 pm

    Hear from the Siblings: Sharing Their Journey with Medical Complexity

    Join a panel of siblings to gain insights into the fears and worries that siblings carry, the things that helped them (and those that didn’t), and how loving a brother […]

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CdLS Foundation

30 Tower Lane, Suite 400. Avon, Connecticut 06001 USA

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