• CdLS Foundation June Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for June 4, and we’d love to welcome you. 📅 June 4, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Behavior This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents […]

  • June Parent University™ Class Presented by Protected Tomorrows

    June Parent University™ Class Presented by Protected Tomorrows Class Five ABLE Accounts: The Basics and What to Use When June 11, 2026 12:00 – 1:00 p.m. CST In this exciting session about Able Accounts, Protected Tomorrows will cover: The basics of ABLE, how ABLE differs by state, and how to stay out of trouble. What […]

  • Southeast Family Gathering- North Carolina

    Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Radionov Family, parents of Kaleb. June 13, 202611 a.m. - 4 p.m. ET Mt. Olivet UMC1082 Community RoadLexington, NC 27295 *A Hoyer lift and adult changing table available at the venue.* Bring the whole family and join […]

  • Unique Challenges When Caring for a Loved One with Cognitive Issues

    Family caregivers provide 19.2 billion hours of unpaid care each year to people with Alzheimer’s disease and other cognitive decline, reflecting the scale and intensity of cognitive caregiving. For those who are also working, these responsibilities can bring added unpredictability, communication challenges, and safety concerns. This Benchmarks of Care training explores the unique realities of […]

  • A Screening of Shared Struggles, Hosted by Courageous Parents Network

    Courageous Parents Network believes that the care of children living with serious medical conditions is a shared enterprise between parents and pediatric clinicians. Both want what’s best for the child and family and bring their respective values, priorities, and expertise to that work. CPN exists at this intersection, creating programs and resources designed to foster […]

  • Jump Into July Stop and Shop Community Bag Program

    Jump into July and support the CdLS Foundation For the entire month of July, the CdLS Foundation has been selected by store leadership to benefit from Stop & Shop’s Community Bag Program. This program makes it easy for shoppers to contribute to their local nonprofits. Whenever a $2.50 reusable Community Bag is purchased at the […]

  • CdLS Foundation July Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for July 2, and we’d love to welcome you. 📅 July 2, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Healthy Living This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]

  • July Parent University™ Class Presented by Protected Tomorrows

    July Parent University™ Class Presented by Protected Tomorrows Class Seven The Ins and Outs on the Uses of Special Needs Trusts July 9, 2026 12:00 – 1:00 p.m. CST In this exciting session about Special Needs Trusts, Protected Tomorrows will cover: • What kind and when should you set up a Special Needs Trust? How […]

  • Multi-Specialty Clinic for Children with CdLS

    The CdLS Foundation, in partnership with Cohen Children’s Medical Center (CCMC), is pleased to announce a Multi-Specialty Clinic for Children with CdLS on July 20, 2026, at Cohen Children’s Medical Center (CCMC) in New York. Dr. Ian Krantz, Chief of the Division of Medical Genetics, and his team of specialists provide care to children and […]

  • Illinois Family Gathering

    Join families from Illinois and surrounding states for a CdLS Foundation Family Gathering. Graciously hosted by: The Beaumont Family, parents of Annie Saturday, August 1, 2026 2:00 p.m. - 5:00 p.m. CT Burning Bush Community Center 1313 Burning Bush Ln. Mount Prospect, IL 60056 You’ll have the chance to meet families in the area who […]