We know that insurance is a necessary part of our planning. Do we really need it if we have enough money? What if we can’t afford what we need? There are so many kinds of life insurance – between term life insurance, permanent life insurance, long-term care insurance and so many variations. Let’s have a […]

Time together making memories as a family may feel especially precious when the child is living with a life-threatening medical condition. Making memories and sharing experiences that become part of the child’s legacy and the family’s treasure box can take many forms and can happen anytime: special occasions or a typical weekday. There is meaning […]

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, October 2, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

Many of us are going to count on the siblings or other family members to step into our shoes. What jobs are they taking on? Do they feel like we have prepared them? What do they want to know yet? Have they already experienced the responsibilities? Have we as parents even talked with them, and […]

Running for those who cannot! Thirty athletes for over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th at The Bank of America Chicago Marathon. They will go through countless hours of physical and mental training all while raising awareness and funds for the […]

This long-standing Missouri golf outing is one of the CdLS Foundation’s largest fundraisers. Last year’s MCWP & PLM’s 36th Annual Amber Gaines Memorial Golf Classic did not disappoint. 132 golfers enjoyed a day of golf, a light breakfast, lunch and awards dinner at the Tapawingo National Golf Club, over $92,000 was raised! Thank you to […]

We are delighted to invite you to become a part of Team CdLS Baltimore for the 25th Annual Baltimore Running Festival, taking place on Saturday, October 18, 2025! This exciting event promises a vibrant atmosphere filled with energy and camaraderie. As you lace up your running shoes, you'll not only be participating in an exhilarating […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations […]

Join families from Irvine and other parts of California for a CdLS Foundation-sponsored Family Gathering. More information to follow!

We all have differing experiences as we think about the future. The best way to learn is from others. Le’t hear some great ideas and pitfalls to avoid. Share the best things to try, and what you might avoid. This is a HOPE session, and you will learn IT IS possible, but that you are […]