Meredith had a variant on the SMC1A gene which brought us into the CdLS family. The light she was in our lives is indescribable and we are so amazingly lucky to be her parents and to have had her with us for the time that we did. She taught us a lot and gave everyone a lot. We met so many amazing people because of her that will be friends for the rest of our lives. She was non-verbal but we know she understood much more then she was able to communicate. She had the most amazing smile and laugh. We of course think her life was way too short and there was so much more we wanted to say and do with her…

Share This