1985 - The first CdLS conference is held in Indianapolis.

They were originally called “CdLS conventions” and were moved inside a hotel because it poured in 1984. A group of community members vowed they would find shelter for the families from then on. 

The biennial National Family Conference continues to bring together individuals with CdLS, families, professionals, volunteers and researchers from around the world to share information, insights, support. Families learn they are not alone as they make connections with others that often last a lifetime.