1983 - Dr. Jackson becomes first Medical Director

In 1983, Dr. Jackson becomes the first Medical Director of the Foundation. He is also credited for starting a formal collection of blood samples for CdLS research in 1990. He began his relationship with the CdLS community in 1977 when Sue Anthony sent a list of questions him. He replies and begins a long-term relationship with people who have CdLS and their families. 

Dr. Jackson dedicated in his efforts to not only understand the genetic causes of CdLS, he is equally interested in pursuing what complications led to the death of those with the condition. He publishes many articles and unselfishly shares his research in pursuit of that understanding. 

Dr. Jackson’s passion for teaching others about CdLS was contagious. He mentors two important figures in our community – Drs. Ian Krantz and Tonie Kline. Dr. Krantz is a leading clinician and researcher at Children’s Hospital of Philadelphia and Dr. Kline among her many other accomplishments, went on to succeed Dr. Jackson as the Foundation’s second medical director.