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Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening medical issues and begin their lives in the NICU, everything can change. For some parents, this may mean navigating a new role: learning how to navigate the NICU and communicate with the medical team; figuring […] |
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For the entire month of March, when you purchase a $2.50 reusable Community Bag at the Stop & Shop located at 498 Bushy Hill Road, Simsbury, CT, $1 is donated to the CdLS Foundation. Our goal is to sell 500 bags (including virtually), equivalent to $2,000500 bags (including virtually), equivalent to $2,000 raisedraised. We are […] |
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Please join us to explore how completing healthcare advance directives for/with your child can support your family’s goals and wishes. We will discuss the importance of discussing and documenting healthcare wishes upstream of an emergent/urgent medical event, medical implications of and quality-of-life considerations related to advance directives, and currently available directives. Presented by Fiona Sampey […] |
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Multi-Specialty Clinic for children with CdLS will be held on March 12, 2025, at Shriners Children's Salt Lake City. The CdLS Foundation and Shriners Children's Salt Lake City have a long-standing partnership. We are truly grateful to work together. The clinic is a wonderful opportunity to meet with multiple doctors with expertise in CdLS all […] |
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