So much of our ability to access medical and behavioral health care in the U.S. depends on a family's health insurance. Whether your health coverage is offered by your employer, purchased on a health exchange, or includes Medicaid or Medicare, understanding health insurance is a challenge for just about everyone. Making sure you make the […]
Anyone, from infancy through adulthood, can experience medical trauma. Caregivers can too. Understanding what medical trauma is and knowing the signs can help you get support for your child and family. Dr. Meghan Marsac, pediatric psychologist, and pediatric medical trauma expert, and Melissa Hogan, mother of a child with a rare disease, wrote the book […]
CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. […]
Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 30th Annual New England Golf Classic to be held on Monday, MAY 22, 2023! This popular event will be played in spring. So be sure to make this your first golf outing of the year, and be ready for a great […]
Join families from Illinois for a CdLS Foundation Sponsored Family Gathering. Graciously hosted by Charyn Beaumont, June 25, 2023 2-5pm PM CST at the Burning Bush Community Center in Mount Prospect, IL. For more information, contact: familyserviceteam@cdlsusa.org. Register here
Join us for a CdLS Family GatheringSaturday August 5, 202310:30 - 12:30Christ Community Church20600 W 119th StreetOlathe, KS 66061Hosted by Ashley and Matt Franck, parents to Sage. RSVP mattandashley28@gmail.comA light lunch will be provided
Protected Tomorrows’ 2023 Parent University™ brings you our ninth in a series of educational webinars… “Don’t Stress Out: Finding Professionals to Help” Our guest speakers will talk about the stress we often face as caregivers (or as the person with the disability); maybe we can’t avoid it, but we certainly should be able to find […]
Please join Aubrie's Army for an afternoon fundraiser to raise awareness and funds for CdLS. Activities include a silent auction, a 1-mile fun run or walk option, light refreshments, and raffle prices. Bid winners will be announced at 4:30 PM. Fun Run tickets are $25 per person. The fun run event starts at 3 PM, […]
Sponsored by: Willow Creek Church, South Barrington Speaker: Mary Anne Ehlert, President & Founder, Protected Tomorrows, Inc. Come join us at Willow Creek Church for Mary Anne Ehlert’s presentation: “Planning For The Future.” This presentation will be uplifting, interactive and educational, as well as provide a good basic understanding of some of the important facts. […]
